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Living with spina bifida: the view of people aged between 18 and 33

Alderson, P; (1998) Living with spina bifida: the view of people aged between 18 and 33. Links (178) pp. 18-20. Green open access

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Abstract

To redress the imbalance of the usual current prenatal information on screened for conditions, 40 adults with serious congenital conditions were interviewed, informally at home, about their daily life, enjoyments as well as problems, and their hopes and plans. The convenience pilot sample was contacted through self-help and social, rather than medical, networks. The four women and one man with spina bifida were aged from 18 to 33. (All the names are changed.)

Type: Article
Title: Living with spina bifida: the view of people aged between 18 and 33
Open access status: An open access version is available from UCL Discovery
Publisher version: https://www.shinecharity.org.uk/news/news/catposts...
Language: English
Additional information: This version is the author accepted manuscript. For information on re-use, please refer to the publisher’s terms and conditions.
UCL classification: UCL
UCL > Provost and Vice Provost Offices
UCL > Provost and Vice Provost Offices > School of Education
UCL > Provost and Vice Provost Offices > School of Education > UCL Institute of Education
UCL > Provost and Vice Provost Offices > School of Education > UCL Institute of Education > IOE - Social Research Institute
URI: https://discovery.ucl.ac.uk/id/eprint/1536373
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