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Children's Consent and 'Assent' to Healthcare Research

Alderson, P; (2012) Children's Consent and 'Assent' to Healthcare Research. In: Freeman, Michael, (ed.) Law and Childhood Studies: Current Legal Issues. Oxford University Press: Oxford, UK.

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Abstract

The idea of children's 'assent' to medical research became part of English law in 2004. However, this overrides English legal traditions of children's consent. Although this chapter concentrates on English law and guidance, it has international relevance. English law integrates with European law and also has influence over more than a billion people in the fifty-four British Commonwealth countries. Ethics guidance in England on consent to research influences international projects, based in Britain and conducted in Europe and in every other continent. Discussions about children's consent and assent illuminate meeting points between law and childhood studies across the world. This chapter examines contrasting meanings of consent and 'assent', and reviews the related law and ethics. It discusses whether children's consent or their assent offers them best support and protection while they are considering whether to take part in research, and while they are research subjects. It gives examples of some present problems, which indicate the need for broader understanding of children's consent.

Type: Book chapter
Title: Children's Consent and 'Assent' to Healthcare Research
ISBN-13: 9780199652501
DOI: 10.1093/acprof:oso/9780199652501.003.0012
Publisher version: http://dx.doi.org/10.1093/acprof:oso/9780199652501...
Additional information: This version is the author accepted manuscript. For information on re-use, please refer to the publisher’s terms and conditions.
Keywords: children's consent, children's assent, medical research, English law, ethics
UCL classification: UCL > Provost and Vice Provost Offices
UCL > Provost and Vice Provost Offices > School of Education
UCL > Provost and Vice Provost Offices > School of Education > UCL Institute of Education
UCL > Provost and Vice Provost Offices > School of Education > UCL Institute of Education > IOE - Social Research Institute
URI: https://discovery.ucl.ac.uk/id/eprint/1535502
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