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People with dementia and carer preferences for home support services in early-stage dementia

Chester, H; Clarkson, P; Davies, L; Sutcliffe, C; Davies, S; Feast, A; Hughes, J; (2017) People with dementia and carer preferences for home support services in early-stage dementia. Aging & Mental Health 10.1080/13607863.2016.1247424. (In press). Green open access

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Abstract

OBJECTIVES: To examine people with dementia and carer preferences for home support attributes in early-stage dementia, building on the paucity of evidence in this area. METHOD: Preferences from 44 people with dementia and 103 carers, recruited through memory clinics and an online questionnaire, were assessed with a Discrete Choice Experiment survey, with attributes informed by an evidence synthesis and lay consultation. A conditional logit model was used to estimate preference weights for the attributes within a home support ‘package’. RESULTS: The most preferred attributes were support with personal feelings and concerns, provided by a trained counsellor at home (coefficient 0.67, p = <0.001) and information on coping with dementia, provided by an experienced worker at home (coefficient 0.59, p = <0.001). However, for people with dementia, opportunities for social and recreational activities were considered the most important (coefficient 0.48, p = <0.001). CONCLUSIONS: These preferences concur with emerging evidence on psychosocial interventions in dementia. Support with personal feelings, information and social engagement are important components. Additionally, knowledge of preferences of people with dementia and their carers can identify other attributes that may be important to effectiveness in ‘living well’ but for which there remains limited evidence.

Type: Article
Title: People with dementia and carer preferences for home support services in early-stage dementia
Open access status: An open access version is available from UCL Discovery
DOI: 10.1080/13607863.2016.1247424
Publisher version: http://dx.doi.org/10.1080/13607863.2016.1247424
Language: English
Additional information: Copyright © 2016 Informa UK Limited, trading as Taylor & Francis Group. This is an Accepted Manuscript of an article published by Taylor & Francis in Aging & Mental Health on 16 November 2016, available online: http://dx.doi.org/10.1080/13607863.2016.1247424
Keywords: Dementia, carer preferences, preferences of people with dementia, home-based interventions
UCL classification: UCL > Provost and Vice Provost Offices
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences > Division of Psychiatry
URI: https://discovery.ucl.ac.uk/id/eprint/1532006
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