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Children and young people with perinatal HIV in Europe: epidemiological situation in 2014 and implications for the future

Writing Group, EuroCoord Kids to Adults Working Group, .; Writing Group, EuroCoord Data Management and Harmonisation Group, .; (2016) Children and young people with perinatal HIV in Europe: epidemiological situation in 2014 and implications for the future. Eurosurveillance , 21 (10) , Article 4. 10.2807/1560-7917.ES.2016.21.10.30162. Green open access

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Abstract

Accurate ascertainment of the number of children living with human immunodeficiency virus (HIV) is important to plan paediatric and adolescent health services. In Europe, the first generation of perinatally HIV-infected survivors are transferring to adult care and their health needs are unknown. We undertook an online survey of HIV cohort studies participating in the EuroCoord Network of Excellence to ascertain the number of perinatally HIV-infected (pHIV) patients included, to compare it with those published by the European Centre for Disease Prevention and Control (ECDC) and the World Health Organization (WHO) and to assess the ability of countries to follow up pHIV patients after transfer to adult care. At the end of 2013, 16 countries in EuroCoord reported 8,229 pHIV patients in follow-up in cohorts, compared with 5,160 cumulative diagnoses reported by the ECDC in the same area. Follow-up of pHIV patients after transfer to adult care varied. It is likely that the number of diagnoses of perinatal HIV reported to ECDC is an underestimate, although this varies by country. Further work is needed to refine estimates and encourage follow-up in adult HIV cohorts to investigate long-term outcomes and improve the care of the next generation of children with HIV.

Type: Article
Title: Children and young people with perinatal HIV in Europe: epidemiological situation in 2014 and implications for the future
Open access status: An open access version is available from UCL Discovery
DOI: 10.2807/1560-7917.ES.2016.21.10.30162
Publisher version: http://dx.doi.org/10.2807/1560-7917.ES.2016.21.10....
Language: English
Additional information: Copyright © The authors, 2016. This is an open-access article distributed under the terms of the Creative Commons Attribution (CC BY 4.0) Licence (https://creativecommons.org/licenses/by/4.0/). You may share and adapt the material, but must give appropriate credit to the source, provide a link to the licence, and indicate if changes were made.
UCL classification: UCL
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > Inst of Clinical Trials and Methodology
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > Inst of Clinical Trials and Methodology > MRC Clinical Trials Unit at UCL
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > Institute for Global Health
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > Institute for Global Health > Infection and Population Health
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > UCL GOS Institute of Child Health
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > UCL GOS Institute of Child Health > Population, Policy and Practice Dept
URI: https://discovery.ucl.ac.uk/id/eprint/1496085
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