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The participation rights of premature babies

Alderson, P; Hawthorne, J; Killen, M; (2005) The participation rights of premature babies. International Journal of Children's Rights , 13 (1) pp. 31-50. 10.1163/1571818054545231. Green open access

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This paper reviews the relevance of the UN, 1989 Convention on the Rights of the Child (UNCRC), and particularly the so-called participation rights, to premature babies and their care. The review is illustrated with examples drawn from a study of four neonatal intensive care units, NICU. The paper begins with the background on human and children’s rights, on research about childhood, babies and participation, and on the neonatal research study. Participation rights include rights to: life and survival; a name, identity and nationality; contact with the baby’s family; respect for the child’s cultural background, and inherent human dignity; the child’s right to express views freely in all matters affecting the child, the views to be given due weight according to the age and ability of the child; the opportunity to be heard during proceedings that affect the child; freedom of expression and information, of thought, conscience and religion, of association and peaceful assembly, rest and leisure, play, and to participate freely in cultural life and the arts; disabled children should enjoy a full and decent life and active participation in the community with the fullest possible social inclusion. The paper concludes that respect for babies’ participation rights is feasible, immediate, integral and indispensable to adequate neonatal care, and that babies’ rights justify and validate high standards of neonatal care.

Type: Article
Title: The participation rights of premature babies
Open access status: An open access version is available from UCL Discovery
DOI: 10.1163/1571818054545231
Publisher version: https://doi.org/10.1163/1571818054545231
Language: English
Additional information: This version is the author accepted manuscript. For information on re-use, please refer to the publisher’s terms and conditions.
UCL classification: UCL
UCL > Provost and Vice Provost Offices > School of Education
UCL > Provost and Vice Provost Offices > School of Education > UCL Institute of Education
UCL > Provost and Vice Provost Offices > School of Education > UCL Institute of Education > IOE - Social Research Institute
URI: https://discovery.ucl.ac.uk/id/eprint/1493971
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