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A systematic review of the relationship between Behavioural and Psychological Symptoms (BPSD) and caregiver wellbeing

Feast, AR; (2016) A systematic review of the relationship between Behavioural and Psychological Symptoms (BPSD) and caregiver wellbeing. International Journal of Psychogeriatrics , 28 (11) pp. 1761-1774. 10.1017/S1041610216000922. Green open access

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Abstract

Background: Behavioural and psychological symptoms in dementia (BPSD) are important predictors of institutionalisation as well as caregiver burden and depression. Previous reviews have tended to group BPSD as one category with little focus on the role of the individual symptoms. This review investigates the role of the individual symptoms of BPSD in relation to the impact on different measures of family caregiver wellbeing. Methods: Systematic review and meta-analysis of articles published in English between 1980 and December 2015 reporting which BPSD affect caregiver wellbeing. Article quality was appraised using the Downs and Black Checklist (1998). Results: 40 medium and high quality quantitative articles met the inclusion criteria, 16 were suitable to be included in a meta-analysis of mean distress scores. Depressive behaviours were the most distressing for caregivers followed by agitation/aggression and apathy. Euphoria was the least distressing. Correlation coefficients between mean total behaviour scores and mean distress scores were pooled for 4 studies. Irritability, aberrant motor behaviour and delusions were the most strongly correlated to distress, disinhibition was the least correlated. Conclusion: The evidence is not conclusive as to whether some BPSD impact caregiver wellbeing more than others. Studies which validly examined BPSD individually were limited, and the included studies used numerous measures of BPSD and numerous measures of caregiver wellbeing. Future research may benefit from a consistent measure of BPSD, examining BPSD individually, and by examining the causal mechanisms by which BPSD impact wellbeing by including caregiver variables so that interventions can be designed to target BPSD more effectively.

Type: Article
Title: A systematic review of the relationship between Behavioural and Psychological Symptoms (BPSD) and caregiver wellbeing
Open access status: An open access version is available from UCL Discovery
DOI: 10.1017/S1041610216000922
Publisher version: http://dx.doi.org/10.1017/S1041610216000922
Language: English
Additional information: This article has been published in a revised form in International Psychogeriatrics: https://doi.org/10.1017/S1041610216000922. This version is free to view and download for private research and study only. Not for re-distribution, re-sale or use in derivative works. Copyright © International Psychogeriatric Association 2016.
Keywords: Behavioural and Psychological Symptoms of Dementia, Carer, Dementia, Neuropsychiatric symptoms, Quality of life
UCL classification: UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences > Division of Psychiatry
URI: https://discovery.ucl.ac.uk/id/eprint/1493420
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