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From informed consent to dissemination: Using participatory visual methods with young people with long-term conditions at different stages of research

Vindrola-Padros, C; Martins, A; Coyne, I; Bryan, G; Gibson, F; (2016) From informed consent to dissemination: Using participatory visual methods with young people with long-term conditions at different stages of research. Global Public Health , 11 (5 - 6) pp. 636-350. 10.1080/17441692.2016.1165718. Green open access

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Abstract

Research with young people suffering from a long-term illness has more recently incorporated the use of visual methods to foster engagement of research participants from a wide age range, capture the longitudinal and complex factors involved in young people’s experiences of care, and allow young people to express their views in multiple ways. Despite its contributions, these methods are not always easy to implement and there is a possibility that they might not generate the results or engagement initially anticipated by researchers. We hope to expand on the emerging discussion on the use of participatory visual methods by presenting the practical issues we have faced while using this methodology during different stages of research: informed assent/consent, data collection, and the dissemination of findings. We propose a combination of techniques to make sure that the research design is flexible enough to allow research participants to shape the research process according to their needs and interests.

Type: Article
Title: From informed consent to dissemination: Using participatory visual methods with young people with long-term conditions at different stages of research
Open access status: An open access version is available from UCL Discovery
DOI: 10.1080/17441692.2016.1165718
Publisher version: http://dx.doi.org/10.1080/17441692.2016.1165718
Language: English
Additional information: This is an Accepted Manuscript of an article published by Taylor & Francis in Global Public Health on 11 April 2016, available online: http://www.tandfonline.com/10.1080/17441692.2016.1165718
Keywords: Participatory research, Visual methods, Young people, Long-term illness
UCL classification: UCL
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Medical Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Medical Sciences > Div of Surgery and Interventional Sci
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Medical Sciences > Div of Surgery and Interventional Sci > Department of Targeted Intervention
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > UCL GOS Institute of Child Health
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > UCL GOS Institute of Child Health > Population, Policy and Practice Dept
URI: https://discovery.ucl.ac.uk/id/eprint/1476930
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