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Parent and self-report health-related quality of life measures in young patients with Tourette syndrome

Cavanna, AE; Luoni, C; Selvini, C; Blangiardo, R; Eddy, CM; Silvestri, PR; Cali', PV; ... Termine, C; + view all (2013) Parent and self-report health-related quality of life measures in young patients with Tourette syndrome. Journal of Child Neurology , 28 (10) 1305 - 1308. 10.1177/0883073812457462. Green open access

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Abstract

Tourette syndrome is a neurodevelopmental disorder characterized by tics and comorbid behavioral problems. This study compared child- and parent-reported quality of life and everyday functioning. We assessed 75 children with Tourette syndrome, of which 42 (56%) had comorbid conditions (obsessive-compulsive disorder = 25; attention-deficit hyperactivity disorder = 6; both comorbidities = 4). All patients completed psychometric instruments, including the Gilles de la Tourette Syndrome-Quality of Life Scale for Children and Adolescents (child report) and the Child Tourette's Syndrome Impairment Scale (parent report). Data were compared for patients with pure Tourette syndrome, Tourette syndrome + obsessive-compulsive disorder, Tourette syndrome + attention-deficit hyperactivity disorder, and Tourette syndrome + both comorbidities. There were no group differences in quality of life. However, there were differences for total, school, and home activities impairment scores. Children and parents may not share similar views about the impact of Tourette syndrome on functioning. The measurement of health-related quality of life in Tourette syndrome is more complex in children than adults.

Type: Article
Title: Parent and self-report health-related quality of life measures in young patients with Tourette syndrome
Location: United States
Open access status: An open access version is available from UCL Discovery
DOI: 10.1177/0883073812457462
Publisher version: http://dx.doi.org/10.1177/0883073812457462
Language: English
Additional information: This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 3.0 License (http://www.creativecommons.org/licenses/by-nc/3.0/) which permits non-commercial use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access page(http://www.uk.sagepub.com/aboutus/openaccess.htm).
Keywords: Tourette syndrome, health-related quality of life, parent report, self-report, tics, Adolescent, Adult, Attention Deficit Disorder with Hyperactivity, Child, Female, Health Status, Humans, Male, Obsessive-Compulsive Disorder, Parents, Psychometrics, Quality of Life, Self Report, Severity of Illness Index, Tics, Tourette Syndrome
UCL classification: UCL
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences
URI: https://discovery.ucl.ac.uk/id/eprint/1469487
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