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The Narrated, Nonnarrated, and the Disnarrated: Conceptual Tools for Analyzing Narratives in Health Services Research

Vindrola-Padros, C; Johnson, GA; (2014) The Narrated, Nonnarrated, and the Disnarrated: Conceptual Tools for Analyzing Narratives in Health Services Research. Qualitative Health Research , 24 (11) pp. 1603-1611. 10.1177/1049732314549019. Green open access

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Abstract

While analyzing the narratives of children receiving pediatric oncology treatment and their parents, we encountered three ways to look at their narratives: what was narrated, nonnarrated, and disnarrated. The narrated refers to the actors (characters) and events (scenes) individuals decided to include in the narration of their experiences, the nonnarrated are everything not included in narration, and the disnarrated are elements that are narrated in the story but did not actually take place. We use our reflection to illustrate how an integrative analysis of these different forms of narration can allow us to produce a holistic interpretation of people’s experiences of illness. This approach is still in the early stages of development, but we hope this article can promote a debate in the field and lead to the refinement of an important tool for narrative analysis. Storytellers shape the world according to the narratives they tell. In health services research, these stories describe the complex constellations of beliefs, values, emotions, intentions, identities, attitudes, and motivations that research participants use to express themselves as individuals and embed themselves within the illness narratives they enact and tell. The research we present here is based on narrative data collected from pediatric oncology patients and their families in Buenos Aires, Argentina. We analyzed the interviews by identifying the primary actors within the illness narrative (i.e., characters) and dominant scenes of activity, organized thematically, based on treatment trajectories. During the analysis process, we encountered three ways to analyze the narratives of the children and their parents. These included searching for the following: (a) who and what is present in narratives (i.e., narrated), (b) who and what is not present within the story (i.e., nonnarrated), and (c) what is alluded to in the text, yet did not actually happen (i.e., disnarrated). This article presents a reflection of this approach, the contributions it made to the interpretation of the data collected in this study, and its potential application in other research projects.

Type: Article
Title: The Narrated, Nonnarrated, and the Disnarrated: Conceptual Tools for Analyzing Narratives in Health Services Research
Open access status: An open access version is available from UCL Discovery
DOI: 10.1177/1049732314549019
Publisher version: http://dx.doi.org/10.1177/1049732314549019
Language: English
Additional information: This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 3.0 License (http://www.creativecommons.org/licenses/by-nc/3.0/) which permits non-commercial use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access page (http://www.uk.sagepub.com/aboutus/openaccess.htm).
Keywords: cancer, children, healthcare, narrative inquiry, qualitative analysis
UCL classification: UCL
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Medical Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Medical Sciences > Div of Surgery and Interventional Sci
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Medical Sciences > Div of Surgery and Interventional Sci > Department of Targeted Intervention
URI: https://discovery.ucl.ac.uk/id/eprint/1448042
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