McCann, LJ;
Arnold, K;
Pilkington, CA;
Huber, AM;
Ravelli, A;
Beard, L;
Beresford, MW;
(2014)
Developing a provisional, international Minimal Dataset for Juvenile Dermatomyositis: for use in clinical practice to inform research.
Pediatr Rheumatol Online J
, 12
, Article 31. 10.1186/1546-0096-12-31.
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Abstract
Juvenile dermatomyositis (JDM) is a rare but severe autoimmune inflammatory myositis of childhood. International collaboration is essential in order to undertake clinical trials, understand the disease and improve long-term outcome. The aim of this study was to propose from existing collaborative initiatives a preliminary minimal dataset for JDM. This will form the basis of the future development of an international consensus-approved minimum core dataset to be used both in clinical care and inform research, allowing integration of data between centres.
| Type: | Article |
|---|---|
| Title: | Developing a provisional, international Minimal Dataset for Juvenile Dermatomyositis: for use in clinical practice to inform research. |
| Location: | England |
| Open access status: | An open access version is available from UCL Discovery |
| DOI: | 10.1186/1546-0096-12-31 |
| Publisher version: | http:dx.doi.org/10.1186/1546-0096-12-31 |
| Language: | English |
| Additional information: | © 2014 McCann et al.; licensee BioMed Central Ltd. This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly credited. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomainzero/1.0/) applies to the data made available in this article, unless otherwise stated. PMCID: PMC4113599 |
| Keywords: | Collaboration, Core set, Dataset, Disease activity, Idiopathic Inflammatory myopathy, International, Juvenile dermatomyositis |
| UCL classification: | UCL UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > UCL GOS Institute of Child Health UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > UCL GOS Institute of Child Health > Infection, Immunity and Inflammation Dept |
| URI: | https://discovery.ucl.ac.uk/id/eprint/1436965 |
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