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Carer-led health interventions to monitor, promote and improve the health of adults with intellectual disabilities in the community: a systematic review

Hithersay, R; Strydom, A; Moulster, G; Buszewicz, M; (2014) Carer-led health interventions to monitor, promote and improve the health of adults with intellectual disabilities in the community: a systematic review. Research in Developmental Disabilities , 35 (4) pp. 887-907. 10.1016/j.ridd.2014.01.010. Green open access

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Abstract

Using carers to help assess, monitor, or promote health in people with intellectual disabilities (ID) may be one way of improving health outcomes in a population that experiences significant health inequalities. This paper provides a review of carer-led health interventions in various populations and healthcare settings, in order to investigate potential roles for carers in ID health care. We used rapid review methodology, using the Scopus database, citation tracking and input from ID healthcare professionals to identify relevant research. 24 studies were included in the final review. For people with ID, the only existing interventions found were carer-completed health diaries which, while being well received, failed to improve health outcomes. Studies in non-ID populations show that carers can successfully deliver screening procedures, health promotion interventions and interventions to improve coping skills, pain management and cognitive functioning. While such examples provide a useful starting point for the development of future carer-led health interventions for people with ID, the paucity of research in this area means that the most appropriate means of engaging carers in a way that will reliably impact on health outcomes in this population remains, as yet, unknown.

Type: Article
Title: Carer-led health interventions to monitor, promote and improve the health of adults with intellectual disabilities in the community: a systematic review
Location: United States
Open access status: An open access version is available from UCL Discovery
DOI: 10.1016/j.ridd.2014.01.010
Publisher version: http://dx.doi.org/10.1016/j.ridd.2014.01.010
Language: English
Additional information: This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/3.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
Keywords: Carer-led intervention, Carers, Health checks, Health intervention, Health promotion, Health services, Intellectual disability, Learning disability, Adaptation, Psychological, Caregivers, Checklist, Health Promotion, Humans, Intellectual Disability, Mass Screening, Overweight, Pediatric Obesity, Risk Reduction Behavior
UCL classification: UCL
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences > Division of Psychiatry
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > Institute of Epidemiology and Health
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > Institute of Epidemiology and Health > Primary Care and Population Health
URI: https://discovery.ucl.ac.uk/id/eprint/1422731
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