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The effectiveness of an Internet support forum for carers of people with dementia: a pre-post cohort study.

McKechnie, V; Barker, C; Stott, J; (2014) The effectiveness of an Internet support forum for carers of people with dementia: a pre-post cohort study. J Med Internet Res , 16 (2) , Article e68. 10.2196/jmir.3166. Green open access

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Abstract

The well-being of informal carers of people with dementia is an important public health issue. Caring for an elderly relative with dementia may be burdensome and stressful, and can negatively affect the carer's social, family, and professional life. The combination of loss, the physical demands of caregiving, prolonged distress, and biological vulnerabilities of older carers may compromise their physical health, increase social isolation, and increase the risk of anxiety and depressive disorders. Caregiver stress is also linked to negative outcomes for the recipient of care and costs to society, including increased nursing home and hospital admissions. Consequently, carer support interventions are an important component of dementia care. Computer-mediated carer support offers a range of potential advantages compared to traditional face-to-face support groups, including accessibility and the possibility of tailoring to meet individual needs, but there has been little research on its effectiveness so far.

Type: Article
Title: The effectiveness of an Internet support forum for carers of people with dementia: a pre-post cohort study.
Location: Canada
Open access status: An open access version is available from UCL Discovery
DOI: 10.2196/jmir.3166
Publisher version: http://dx.doi.org/10.2196/jmir.3166
Language: English
Additional information: Copyright ©Vicky McKechnie, Chris Barker, Josh Stott. Originally published in the Journal of Medical Internet Research (http://www.jmir.org), 28.02.2014. This is an open-access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/2.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work, first published in the Journal of Medical Internet Research, is properly cited.
Keywords: Alzheimer disease, Internet, caregivers, dementia, self-help groups, Adult, Aged, Aged, 80 and over, Anxiety, Caregivers, Cohort Studies, Data Collection, Dementia, Depression, Female, Great Britain, Humans, Internet, Male, Middle Aged, Self-Help Groups, Social Support
UCL classification: UCL
UCL > Provost and Vice Provost Offices
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences > Div of Psychology and Lang Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences > Div of Psychology and Lang Sciences > Clinical, Edu and Hlth Psychology
URI: https://discovery.ucl.ac.uk/id/eprint/1420224
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