UCL Discovery
UCL home » Library Services » Electronic resources » UCL Discovery

A framework for understanding quality of life in individuals without capacity

Round, J; Sampson, EL; Jones, L; (2014) A framework for understanding quality of life in individuals without capacity. Quality of Life Research , 23 (2) pp. 477-484. 10.1007/s11136-013-0500-z. Green open access

[img]
Preview
Text
Jones_A framework for understanding quality of life in individuals without capacity.pdf

Download (444kB) | Preview

Abstract

PURPOSE: The wide range of tools and methods developed for measuring and valuing health-related quality of life for use in economic evaluations are appropriate for use in most populations. However, for certain populations, specific tools may need to be developed to reflect the particular needs of that population. Patients without capacity - particularly patients with severe dementia--are such a population. At present, the tools available to economists for measuring and valuing quality of life in these patients lack validity. Here, we seek to understand the framework within which common instruments have been developed, critique these instruments with respect to patients with severely restricted capacity and to develop a new way of thinking about how to value health-related quality of life in such patients. / METHOD: In this essay, we describe and critique the conceptual framework by which common instruments used for measuring and valuing quality of life have been developed. / RESULTS: We show that current common instruments used for measuring and valuing quality of life in general populations are not appropriate for populations with severely restricted capacity. / CONCLUSIONS: We propose a new framework for thinking about quality of life in this population, based on notions of observable person-centred outcomes and utility derived from processes of care.

Type: Article
Title: A framework for understanding quality of life in individuals without capacity
Location: Netherlands
Open access status: An open access version is available from UCL Discovery
DOI: 10.1007/s11136-013-0500-z
Publisher version: http://dx.doi.org/10.1007/s11136-013-0500-z
Language: English
Additional information: Copyright © The Authors 2014. This is an Open Access article published under a Creative Commons Attribution 4.0 International (CC BY) Licence (http://creativecommons.org/licenses/by/4.0/).
Keywords: Adolescent, Adult, Aged, Aged, 80 and over, Dementia, Female, Health Status Indicators, Health Surveys, Humans, Male, Middle Aged, Quality of Life, Surveys and Questionnaires, Visual Analog Scale, Young Adult
UCL classification: UCL
UCL > Provost and Vice Provost Offices
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences > Division of Psychiatry
UCL > Provost and Vice Provost Offices > UCL BEAMS
UCL > Provost and Vice Provost Offices > UCL BEAMS > Faculty of Maths and Physical Sciences
URI: https://discovery.ucl.ac.uk/id/eprint/1403051
Downloads since deposit
104Downloads
Download activity - last month
Download activity - last 12 months
Downloads by country - last 12 months

Archive Staff Only

View Item View Item