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Palliative care services for people with dementia: A synthesis of the literature reporting the views and experiences of professionals and family carers.

Raymond, M; Warner, A; Davies, N; Iliffe, S; Manthorpe, J; Ahmedzhai, S; (2014) Palliative care services for people with dementia: A synthesis of the literature reporting the views and experiences of professionals and family carers. Dementia (London) , 13 (1) 96 - 110. 10.1177/1471301212450538. Green open access

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Abstract

The experience of being a carer of a person with dementia at the end of life is expressed in these 12 accounts. This is a synthesis of the concerns and challenges for carers at the end of life. These accounts are often insightful and provide several views of carers' and professionals' experience. Having a close relationship as a carer gives a unique and poignant view. What emerges from this review is a range of perspectives that provide contrasting views of the heterogeneity of carers and professionals. This may be helpful for professionals and policy makers to consider when planning end-of-life care strategies for people with dementia and insights drawn from hearing directly from carers may be powerful learning tools.

Type: Article
Title: Palliative care services for people with dementia: A synthesis of the literature reporting the views and experiences of professionals and family carers.
Location: England
Open access status: An open access version is available from UCL Discovery
DOI: 10.1177/1471301212450538
Publisher version: http://dx.doi.org/10.1177/1471301212450538
Language: English
Additional information: © The Author(s) 2012. This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 3.0 License (http://www.creativecommons.org/licenses/by-nc/3.0/) which permits non-commercial use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access page(http://www.uk.sagepub.com/aboutus/openaccess.htm).
Keywords: Alzheimer's, carer, caring, dementia, narrative, palliative care, review
UCL classification: UCL
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > Institute of Epidemiology and Health
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > Institute of Epidemiology and Health > Primary Care and Population Health
URI: https://discovery.ucl.ac.uk/id/eprint/1355851
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