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Stigma scale of epilepsy - The perception of epilepsy stigma in different cities in Brazil

Fernandes, PT; Noronha, ALA; Sander, JW; Li, LM; (2008) Stigma scale of epilepsy - The perception of epilepsy stigma in different cities in Brazil. ARQ NEURO-PSIQUIAT , 66 (3A) 471 - 476. 10.1590/S0004-282X2008000400006. Green open access

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Abstract

Purpose: To assess the perception of epilepsy stigma in different regions of Brazil. Method: The Stigma Scale of Epilepsy (SSE) questionnaire was applied to people in different Brazilian urban settings. The survey was performed on individual basis; an interviewer read the questions to the subjects and wrote down the answers. The same procedure was applied to all the subjects and took around 10 minutes. Results: 266 questionnaires were completed in four different towns of Brazil (Curitiba=83; Sao Paulo=47; Vila Velha=79; Ipatinga=57). The overall stigma score was 49.7 (median). Different scores were obtained in each locality. Vila Velha=42; Curitiba=49; Sao Paulo=52; Ipatinga=54 (ANOVA [2.262]=3.82; p=0.01). Conclusion: This study showed differences in the perception of stigma, which may depend on cultural and regional aspects. The concept of stigma has cultural perspectives, depending on the region and the context where each person lives. The understanding of this aspect of epilepsy is important to promote better de-stigmatization campaigns, considering the cultural and social differences.

Type: Article
Title: Stigma scale of epilepsy - The perception of epilepsy stigma in different cities in Brazil
Open access status: An open access version is available from UCL Discovery
DOI: 10.1590/S0004-282X2008000400006
Publisher version: http://dx.doi.org/10.1590/S0004-282X2008000400006
Language: English
Additional information: All the content of the journal, except where otherwise noted, is licensed under a Creative Commons License
Keywords: stigma, epilepsy, stigma scale, quality of life, PUBLIC-ATTITUDES, LIFE
UCL classification: UCL
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences > UCL Queen Square Institute of Neurology
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences > UCL Queen Square Institute of Neurology > Clinical and Experimental Epilepsy
URI: https://discovery.ucl.ac.uk/id/eprint/1349660
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