Wild, EJ;
Carroll, JB;
(2012)
HDBuzz: empowering patients through accessible education.
Trends in Molecular Medicine
, 18
(1)
1 - 3.
10.1016/j.molmed.2011.09.003.
![[thumbnail of UCL1_TRMOME_11-00151_Carroll&Wild_EdComm.pdf]](https://discovery.ucl.ac.uk/style/images/fileicons/application_pdf.png) Preview |
PDF
UCL1_TRMOME_11-00151_Carroll&Wild_EdComm.pdf Download (197kB) |
Abstract
Research and patient communities are firmly interdependent. Engaged patient communities provide biological samples and data that drive discoveries which, in turn, fuel the development of novel therapies. Historically, Huntington's disease (HD) has benefited from trusting interactions between scientists and patients. However, even for HD, communication between the research and patient communities is suboptimal. The web platform HDBuzz was created to rectify this situation by providing accurate, accessible information on the latest HD research to patients and their supporters.
| Type: | Article |
|---|---|
| Title: | HDBuzz: empowering patients through accessible education |
| Location: | England |
| Open access status: | An open access version is available from UCL Discovery |
| DOI: | 10.1016/j.molmed.2011.09.003 |
| Publisher version: | http://dx.doi.org/10.1016/j.molmed.2011.09.003 |
| Language: | English |
| Additional information: | NOTICE: this is the author’s version of a work that was accepted for publication in Trends in Molecular Medicine. Changes resulting from the publishing process, such as peer review, editing, corrections, structural formatting, and other quality control mechanisms may not be reflected in this document. Changes may have been made to this work since it was submitted for publication. A definitive version was subsequently published in Trends in Molecular Medicine, [VOL18, ISSUE1, 01/2012] http://dx.doi.org/10.1016/j.molmed.2011.09.003 |
| Keywords: | Humans, Huntington Disease, Patient Education as Topic, Research, Social Media |
| UCL classification: | UCL UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences > UCL Queen Square Institute of Neurology UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences > UCL Queen Square Institute of Neurology > Neurodegenerative Diseases |
| URI: | https://discovery.ucl.ac.uk/id/eprint/1329580 |
Archive Staff Only
 |
View Item |
