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Palliative care in advanced dementia; A mixed methods approach for the development of a complex intervention.

Sampson, EL; Thuné-Boyle, I; Kukkastenvehmas, R; Jones, L; Tookman, A; King, M; Blanchard, MR; (2008) Palliative care in advanced dementia; A mixed methods approach for the development of a complex intervention. BMC Palliative Care , 7 , Article 8. 10.1186/1472-684X-7-8. Green open access

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Abstract

There is increasing interest in improving the quality of care that patients with advanced dementia receive when they are dying. Our understanding of the palliative care needs of these patients and the natural history of advanced disease is limited. Many people with advanced dementia have unplanned emergency admissions to the acute hospital; this is a critical event: half will die within 6 months. These patients have complex needs but often lack capacity to express their wishes. Often carers are expected to make decisions. Advance care planning discussions are rarely performed, despite potential benefits such more consistent supportive healthcare, a reduction in emergency admissions to the acute hospital and better resolution of carer bereavement.

Type: Article
Title: Palliative care in advanced dementia; A mixed methods approach for the development of a complex intervention.
Location: England
Identifier: PMCID: PMC2475530
Open access status: An open access version is available from UCL Discovery
DOI: 10.1186/1472-684X-7-8
Publisher version: http://dx.doi.org/10.1186/1472-684X-7-8
Language: English
Additional information: © 2008 Sampson et al; licensee BioMed Central Ltd. This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/2.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
UCL classification: UCL > Provost and Vice Provost Offices
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences > Division of Psychiatry
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Pop Health Sciences > Institute of Epidemiology and Health
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Pop Health Sciences > Institute of Epidemiology and Health > Epidemiology and Public Health
URI: https://discovery.ucl.ac.uk/id/eprint/125879
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