Hayward, S;
Hayes, D;
Griffiths, T;
Bloch, S;
Clarke, MT;
(2025)
Developing Collaborative Relationships between Professionals and Parents of Children with Neurodisability: A Meta-Narrative Review.
Current Developmental Disorders Reports
, 12
, Article 16. 10.1007/s40474-025-00327-0.
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Abstract
Purpose of Review: Parents of children with complex neurodisabilities have multiple encounters with healthcare and disability professionals. Many parents view these encounters as unsatisfactory, citing a failure of professionals to listen to their perspectives. This meta-narrative review provides a novel synthesis of the research traditions examining parent-professional collaboration. This re-evaluation of collaborative relationships is timely given current dialogues within children’s services in response to evolving understandings of disability and neurodiversity. / Recent Findings: Seven research traditions are described with roots in: social justice, social ecology and sociology, community psychology, adolescent psychiatry, special education, cultural anthropology, and critical disability studies. / Summary: This review highlights several ‘mixed messages’ arising between policies and experiences which can create discord between parents and professionals; along with institutional contexts which prohibit relationship building. Flexible and responsive services are challenging to deliver yet co-developed interventions which value parents’ knowledge and skills are an important driver for institutional and policy change.
| Type: | Article |
|---|---|
| Title: | Developing Collaborative Relationships between Professionals and Parents of Children with Neurodisability: A Meta-Narrative Review |
| Open access status: | An open access version is available from UCL Discovery |
| DOI: | 10.1007/s40474-025-00327-0 |
| Publisher version: | https://doi.org/10.1007/s40474-025-00327-0 |
| Language: | English |
| Additional information: | This article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/. |
| Keywords: | collaboration; parent-professional relationships; neurodisability; family-centred; child-rehabilitation |
| UCL classification: | UCL UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences > Div of Psychology and Lang Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences > Div of Psychology and Lang Sciences > Language and Cognition |
| URI: | https://discovery.ucl.ac.uk/id/eprint/10207369 |
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