Sumodhee, Dayyanah;
Venning, Kristina;
Moghul, Ismail;
Wemyss, Thomas;
Ramessur, Rishi;
Abbas, Mohammed;
Ioannidou, Estelle;
... Thomas, Peter; + view all
(2025)
A commentary on ophthalmic patients co-designing a new tool to better understand their hospital letters.
Research Involvement and Engagement
, 11
, Article 25. 10.1186/s40900-025-00697-0.
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Abstract
Patient and Public Involvement and Engagement (PPIE) is recognised by the National Institute for Health and Care Research in the UK as crucial for high-quality outcomes with numerous benefits for patients. Patient and public contributors can provide both personal knowledge and lived experiences which complement the perspectives of the team. In this commentary, we share our experiences of facilitating a project, Explain.Health, to co-design a digital platform to help patients better understand their hospital letters by explaining medical terms. We describe the stages in the formation of the PPIE group, the stages in the co-design process and the next steps for the project. We reflect on PPIE of the project, including lessons learned for future PPIE work in building new digital platforms. Important considerations for this PPIE work include: (1) ensuring each public contributor feels listened to and understands how their involvement contributes to the design of the platform, (2) providing regular and clear communication and (3) offering adequate support to public contributors (appropriate formatting of resources for visually impaired contributors, incentives, assistance to use the meeting platform) to establish an inclusive and considerate approach. These findings can inform future PPIE plans for stakeholders involved in similar projects.
| Type: | Article |
|---|---|
| Title: | A commentary on ophthalmic patients co-designing a new tool to better understand their hospital letters |
| Location: | England |
| Open access status: | An open access version is available from UCL Discovery |
| DOI: | 10.1186/s40900-025-00697-0 |
| Publisher version: | https://doi.org/10.1186/s40900-025-00697-0 |
| Language: | English |
| Additional information: | © The Author(s), 2025. This is an open access article distributed under the terms of the Creative Commons Attribution-Non Commercial-No Derivatives License 4.0 (CC-BY-NC-ND), where it is permissible to download and share the work provided it is properly cited. The work cannot be changed in any way or used commercially without permission from the journal. http://creativecommons.org/licenses/by-nc-nd/4.0/ |
| Keywords: | Co-design, Hospital letters, Ophthalmology, Public involvement |
| UCL classification: | UCL UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences > Institute of Ophthalmology |
| URI: | https://discovery.ucl.ac.uk/id/eprint/10206380 |
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