Baz, Sarah Akhtar;
Woodrow, Mirembe;
Clutterbuck, Donna;
Fang, Chao;
Mullard, Jordan;
Banerjee, Amitava;
Barley-McMullen, Sarah;
... Alwan, Nisreen A; + view all
(2024)
Long COVID and Health Inequalities: What's Next for Research and Policy Advocacy?
Health Expectations
, 27
(5)
, Article e70047. 10.1111/hex.70047.
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Abstract
Introduction: Organised by the ‘Qualitative Long Covid Network’, a workshop for qualitative Long COVID (LC) researchers, LC charity representatives and people with LC took place in June 2023, where research on the intersectional inequalities affecting LC prevalence, recognition and care was shared and discussed. // Methods: Five key themes were drawn up from presentations, discussions and reflections during the workshop, which are presented in this study. // Results: The following five themes are discussed: the unfairness of LC, difficulties in accessing care, mistrust of the healthcare system, a lack of understanding of LC and experiences of stigma and discrimination. Factors that widen or narrow inequalities related to LC were identified. // Conclusion: A call to action is proposed to investigate and address inequalities through a robust LC research agenda that speaks with conviction to policy and decision-makers. We argue that there needs to be a strong investment in research and evidence-based policy and practice to mitigate the worst effects of the condition and address the inequalities in experience, treatment and support, which are experienced more often and more acutely by some of society's most vulnerable and disadvantaged individuals. // Patient and Public (PPI) Contribution: Projects included in this article had PPI ongoing activity to inform their research. A member of the CONVALESCENCE PPI group presented at the QLC Network ‘Long Covid and Health Inequalities’ workshop, as did members of Long COVID Kids, Long COVID Support and Long COVID SOS charities. They were all invited to be co-authors of this article.
| Type: | Article |
|---|---|
| Title: | Long COVID and Health Inequalities: What's Next for Research and Policy Advocacy? |
| Location: | England |
| Open access status: | An open access version is available from UCL Discovery |
| DOI: | 10.1111/hex.70047 |
| Publisher version: | https://doi.org/10.1111/hex.70047 |
| Language: | English |
| Additional information: | Copyright © 2024 The Author(s). Health Expectations published by John Wiley & Sons Ltd. This is an open access article under the terms of the Creative Commons Attribution License, https://creativecommons.org/licenses/by/4.0/, which permits use, distribution and reproduction in any medium, provided the original work is properly cited. |
| Keywords: | Health inequalities; Long COVID; QLC network; qualitative |
| UCL classification: | UCL UCL > Provost and Vice Provost Offices > School of Education UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences UCL > Provost and Vice Provost Offices > School of Education > UCL Institute of Education UCL > Provost and Vice Provost Offices > School of Education > UCL Institute of Education > IOE - Education, Practice and Society UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > Institute of Health Informatics |
| URI: | https://discovery.ucl.ac.uk/id/eprint/10205906 |
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