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Evaluating an interactive tool that reasons about quality of life to support life planning by older people

Maiden, Neil; Hide, Sophie; Lockerbie, James; Stumpf, Simone; Hoe, Juanita; Hirani, Shashi; (2024) Evaluating an interactive tool that reasons about quality of life to support life planning by older people. Digital Health , 10 10.1177/20552076241255633. (In press). Green open access

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Abstract

Objectives: In response to the lack of digital support for older people to plan their lives for quality of life, research was undertaken to co-design and then evaluate a new digital tool that combined interactive guidance for life planning with a computerised model of quality of life. Method: First, a workshop-based process for co-designing the SCAMPI tool with older people is reported. A first version of this tool was then evaluated over eight consecutive weeks by nine older people living in their own homes. Four of these people were living with Parkinson's disease, one with early-stage dementia, and four without any diagnosed chronic condition. Regular semi-structured interviews were undertaken with each individual older person and, where wanted, their life partner. A more in-depth exit interview was conducted at the end of the period of tool use. Themes arising from analyses of content from these interviews were combined with first-hand data collected from the tool's use to develop a description of how each older person used the tool over the 8 weeks. Results: The findings provided the first evidence that the co-designed tool, and in particular the computerised model, could offer some value to older people. Although some struggled to use the tool as it was designed, which led to limited uptake of the tool's suggestions, the older people reported factoring these suggestions into their longer-term planning, as health and/or circumstances might change. Conclusions: The article contributes to the evolving discussion about how to deploy such digital technologies to support quality of life more effectively.

Type: Article
Title: Evaluating an interactive tool that reasons about quality of life to support life planning by older people
Location: United States
Open access status: An open access version is available from UCL Discovery
DOI: 10.1177/20552076241255633
Publisher version: https://doi.org/10.1177/20552076241255633
Language: English
Additional information: © The Author(s) 2024. Creative Commons License (CC BY 4.0) This article is distributed under the terms of the Creative Commons Attribution 4.0 License (https://creativecommons.org/licenses/by/4.0/) which permits any use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access page (https://us.sagepub.com/en-us/nam/open-access-at-sage).
Keywords: Science & Technology, Life Sciences & Biomedicine, Health Care Sciences & Services, Health Policy & Services, Public, Environmental & Occupational Health, Medical Informatics, Older people, dementia, Parkinson's disease, quality of life, life planning, summative evaluation, DEMENTIA, SELF, AWARENESS, TELECARE, CARE
UCL classification: UCL
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences > Division of Psychiatry
URI: https://discovery.ucl.ac.uk/id/eprint/10202539
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