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Autistic identity: A systematic review of quantitative research

Davies, Jade; Cooper, Kate; Killick, Estelle; Sam, Evelyn; Healy, Molly; Thompson, Grace; Mandy, Will; ... Crane, Laura; + view all (2024) Autistic identity: A systematic review of quantitative research. Autism Research , 17 (5) pp. 874-897. 10.1002/aur.3105. Green open access

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Abstract

Autism can be considered both a personal and social identity. Identifying the factors contributing to positive Autistic identity development is crucial given the potential implications for mental health and wellbeing. In this systematic review, we aimed to synthesize quantitative literature on Autistic identity to identify the (individual and environmental) factors associated with Autistic identity, and to ascertain the relationship between Autistic identity and mental health and wellbeing. A total of 3,617 studies were screened and 20 met our inclusion criteria. Results indicated that people developed a more positive Autistic identity when receiving external autism acceptance and external support. The association between individual factors and Autistic identity were largely nonsignificant or inconclusive, highlighting the need for broad support that meets the needs of a range of Autistic people, rather than specific subgroups. Importantly, positive Autistic identity was associated with improved mental health and wellbeing. Peer support and/or self-directed support resources may be valuable mechanisms for supporting Autistic people to cultivate a positive Autistic identity. The evaluation of such support, including the long-term impacts on identity development, will be a critical avenue for future research.

Type: Article
Title: Autistic identity: A systematic review of quantitative research
Location: United States
Open access status: An open access version is available from UCL Discovery
DOI: 10.1002/aur.3105
Publisher version: http://dx.doi.org/10.1002/aur.3105
Language: English
Additional information: This is an open access article under the terms of the Creative Commons Attribution License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited. © 2024 The Authors. Autism Research published by International Society for Autism Research and Wiley Periodicals LLC.
Keywords: Science & Technology, Social Sciences, Life Sciences & Biomedicine, Behavioral Sciences, Psychology, Developmental, Psychology, autism, identity, mental health, systematic review, wellbeing, SPECTRUM DISORDER, MENTAL-HEALTH, SELF-ESTEEM, SOCIAL SUPPORT, DIAGNOSIS, ADULTS, ADOLESCENTS, EXPERIENCES, DISABILITY, ILLNESS
UCL classification: UCL
UCL > Provost and Vice Provost Offices > School of Education
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences
UCL > Provost and Vice Provost Offices > School of Education > UCL Institute of Education
UCL > Provost and Vice Provost Offices > School of Education > UCL Institute of Education > IOE - Psychology and Human Development
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences > Div of Psychology and Lang Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences > Div of Psychology and Lang Sciences > Clinical, Edu and Hlth Psychology
URI: https://discovery.ucl.ac.uk/id/eprint/10193810
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