Mercante, A;
Owens, J;
Bruni, O;
Nunes, ML;
Gringras, P;
Li, SX;
Papa, S;
... Castronovo, V; + view all
(2024)
International consensus on sleep problems in pediatric palliative care: Paving the way.
Sleep Medicine
, 119
pp. 574-583.
10.1016/j.sleep.2024.05.042.
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Abstract
OBJECTIVE: Sleep problems constitute a common and heterogeneous complaint in pediatric palliative care (PPC), where they often contribute to disease morbidity and cause additional distress to children and adolescents and their families already facing the burden of life-threatening and life-limiting conditions. Despite the significant impact of sleep problems, clinical evidence is lacking. The application of general pediatric sleep recommendations appears insufficient to address the unique challenges of the PPC dimension in terms of disease variability, duration, comorbidities, complexity of needs, and particular features of sleep problems related to hospice care. Therefore, we initiated an international project aimed at establishing a multidisciplinary consensus. METHODS: A two-round Delphi approach was adopted to develop recommendations in the areas of Definition, Assessment/Monitoring, and Treatment. After selecting a panel of 72 worldwide experts, consensus (defined as ≥75% agreement) was reached through an online survey. RESULTS: At the end of the two voting sessions, we obtained 53 consensus recommendations based on expert opinion on sleep problems in PPC. CONCLUSIONS: This study addresses the need to personalize sleep medicine's approach to the palliative care setting and its peculiarities. It provides the first international consensus on sleep problems in PPC and highlight the urgent need for global guidance to improve sleep-related distress in this vulnerable population and their caregivers. Our findings represent a crucial milestone that will hopefully enable the development of guidelines in the near future.
| Type: | Article |
|---|---|
| Title: | International consensus on sleep problems in pediatric palliative care: Paving the way |
| Open access status: | An open access version is available from UCL Discovery |
| DOI: | 10.1016/j.sleep.2024.05.042 |
| Publisher version: | http://dx.doi.org/10.1016/j.sleep.2024.05.042 |
| Language: | English |
| Additional information: | © 2024 The Author(s). Published by Elsevier B.V. under a Creative Commons license (http://creativecommons.org/licenses/by-nc-nd/4.0/). |
| Keywords: | Pediatric palliative care, Sleep, Sleep problems, Complex healthcare needs, Consensus |
| UCL classification: | UCL UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > UCL GOS Institute of Child Health UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > UCL GOS Institute of Child Health > Population, Policy and Practice Dept |
| URI: | https://discovery.ucl.ac.uk/id/eprint/10193386 |
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