Robinson-Papp, Jessica;
Lawrence, Steven;
Wadley, Antonia;
Scott, Whitney;
George, Mary Catherine;
Josh, Jo;
O'Brien, Kelly K;
... Merlin, Jessica S; + view all
(2024)
Priorities for HIV and chronic pain research: results from a survey of individuals with lived experience.
AIDS Care
10.1080/09540121.2024.2334358.
(In press).
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Abstract
The Global Task Force on Chronic Pain in HIV published seven research priorities in the field of HIV-associated chronic pain in 2019: (1) causes; (2) management; (3) treatment individualization and integration with addiction treatment; (4) mental and social health factors; (5) prevalence; (6) treatment cost effectiveness; and (7) prevention. The current study used a web-based survey to determine whether the research topics were aligned with the priorities of adults with lived experiences of HIV and chronic pain. We also collected information about respondents' own pain and treatment experiences. We received 311 survey responses from mostly US-based respondents. Most respondents reported longstanding, moderate to severe, multisite pain, commonly accompanied by symptoms of anxiety and/or depression. The median number of pain treatments tried was 10 (IQR = 8, 13), with medications and exercise being the most common modalities, and opioids being viewed as the most helpful. Over 80% of respondents considered all research topics either "extremely important" or "very important". Research topic #2, which focused on optimizing management of pain in people with HIV, was accorded the greatest importance by respondents. These findings suggest good alignment between the priorities of researchers and US-based people with lived experience of HIV-associated chronic pain.
| Type: | Article |
|---|---|
| Title: | Priorities for HIV and chronic pain research: results from a survey of individuals with lived experience |
| Location: | England |
| DOI: | 10.1080/09540121.2024.2334358 |
| Publisher version: | https://doi.org/10.1080/09540121.2024.2334358 |
| Language: | English |
| Additional information: | This version is the author accepted manuscript. For information on re-use, please refer to the publisher’s terms and conditions. |
| Keywords: | Chronic pain, HIV, pain treatment, patient engagement, research priorities, SDG 3: Good health and well-being |
| UCL classification: | UCL UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > Institute for Global Health UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > Institute for Global Health > Infection and Population Health |
| URI: | https://discovery.ucl.ac.uk/id/eprint/10191100 |
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