De Kuijper, Gerda;
Jonker, Josien;
Sheehan, Rory;
Hassiotis, Angela;
(2024)
A survey on service users' perspectives about information and shared decision-making in psychotropic drug prescriptions in people with intellectual disabilities.
British Journal of Learning Disabilities
10.1111/bld.12582.
(In press).
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Abstract
Background: In people with intellectual disabilities and mental disorders and/or challenging behaviours, rates of psychotropic drug prescription are high. In clinical treatments and evaluations, all stakeholders should be involved in a process of shared decision-making (SDM). We aimed to investigate the perspectives of clients and their carers on clients’ treatments with psychotropic drugs. / Methods: We conducted a survey among adults with intellectual disabilities in a Dutch mental healthcare centre providing community, outpatient and inpatient care. Data were collected between January and June 2022. Questions focused on experiences with the provision of information, treatment involvement and SDM and participants' wishes in this regard. / Findings: Respondents (57 clients and 21 carers) were largely satisfied with the overall care from their clinicians, and with how information on the pharmacological treatment was provided verbally, but written information was insufficient or not provided. Seventy per cent of clients and 60% of carers reported being involved in medication decision-making. However, over 75% of participants desired greater involvement in SDM and over 60% in medication reviews. / Conclusions: Service users and representatives were satisfied about the treatment and verbal information on their psychotropic drug use. The provision of written information, the SDM process and ongoing evaluation of psychotropic medication use could be improved.
| Type: | Article |
|---|---|
| Title: | A survey on service users' perspectives about information and shared decision-making in psychotropic drug prescriptions in people with intellectual disabilities |
| Open access status: | An open access version is available from UCL Discovery |
| DOI: | 10.1111/bld.12582 |
| Publisher version: | https://doi.org/10.1111/bld.12582 |
| Language: | English |
| Additional information: | Copyright © 2024 The Authors. British Journal of Learning Disabilities published by John Wiley & Sons Ltd. This is an open access article under the terms of the Creative Commons Attribution-NonCommercial-NoDerivs License (http://creativecommons.org/licenses/by-nc-nd/4.0/), which permits use and distribution in any medium, provided the original work is properly cited, the use is non-commercial and no modifications or adaptations are made. |
| Keywords: | intellectual disability, psychotropic drug prescription, shared decision-making, service users' perspectives, survey |
| UCL classification: | UCL UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences > Division of Psychiatry UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences > Division of Psychiatry > Epidemiology and Applied Clinical Research |
| URI: | https://discovery.ucl.ac.uk/id/eprint/10187911 |
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