Redmayne, B;
Allain, L;
Carter, S;
Healy, M;
Islaam, L;
Portway, L;
Thompson, G;
+ view all
(2023)
Research on post-diagnostic support for autistic young people.
Ambitious about Autism and UCL: London, UK.
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Abstract
Autistic young people have told us that having a limited understanding of their own diagnosis makes their mental health worse, particularly during the transition to adulthood. Currently, post-diagnosis support is not widely available and many autistic young people from marginalised communities face additional barriers in accessing any support. In response, Ambitious about Autism worked with autistic young people to co-design an online peer support course called Understanding You, Discovering You (www.ambitiousaboutautism.org.uk/ post-diagnosis-peer-support). This course supports autistic young people to explore what autism is, develop a positive autistic identity, and equips young people with practical skills, with the aim to improve their mental health. We commissioned a team of researchers, led by UCL Centre for Research in Autism in Education (CRAE), to conduct research to help collate evidence linking autistic identity and wellbeing, investigate inequalities in accessing post-diagnostic support and lead an evaluation of the co-production and initial pilot of the online course. We wanted a strong research base to help us learn, inform the ongoing development of the online course, and provide us with a series of recommendations to make the course inclusive and accessible to more autistic young people. With the support of UCL CRAE and their colleagues, this research is now complete and summarised in this document. We hope by sharing our learnings and the research findings we can support more autistic young people, post-diagnosis. Full research papers are linked by QR codes in this document.
| Type: | Report |
|---|---|
| Title: | Research on post-diagnostic support for autistic young people |
| Open access status: | An open access version is available from UCL Discovery |
| DOI: | 10.14324/000.rp.10178344 |
| Publisher version: | https://www.ambitiousaboutautism.org.uk/what-we-do... |
| Language: | English |
| UCL classification: | UCL UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences > Div of Psychology and Lang Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences > Div of Psychology and Lang Sciences > Clinical, Edu and Hlth Psychology |
| URI: | https://discovery.ucl.ac.uk/id/eprint/10178344 |
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