Zadeh, Sophie;
Jadva, Vasanti;
Jones, Catherine;
(2023)
Searching for and making genetic connections: recommendations for practice from donor conceived adults in the UK.
Reproductive BioMedicine Online
, Article 103418. 10.1016/j.rbmo.2023.103418.
(In press).
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Abstract
RESEARCH QUESTION: What are the support needs of donor conceived individuals who are searching for or open to matching with genetic connections? DESIGN: 88 donor conceived adults in the UK participated in an online survey open between January and August 2022. Participants were asked about their level of awareness of current resource provision; recommendations for resources to support the process of searching for genetic connections; and resources to support with feelings about searching or being found by genetic connections. RESULTS: Participants were found to have varying levels of awareness of the resources available. Their recommendations for practical and emotional resources also varied. The most recommended resources for practical support were DNA testing and changes to UK law. The most recommended resources for emotional support were counselling and peer and other support groups. CONCLUSIONS: The impact of legal and technological changes such as direct-to-consumer DNA testing and the legal transition to identifiable donation may be felt by donor conceived individuals irrespective of their year of birth. The wishes of donor conceived individuals for different support resources should be borne in mind by practitioners, regulatory bodies, and policymakers going forward.
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