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Consent through art: a critique of a visual method developed with peer-researchers in southern Nepal

Morrison, Joanna; Priyadarshani, Awantika; Arjyal, Abriti; (2023) Consent through art: a critique of a visual method developed with peer-researchers in southern Nepal. International Journal of Social Research Methodology pp. 1-7. 10.1080/13645579.2023.2243140. (In press). Green open access

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Abstract

Obtaining informed consent can be challenging during peer research when the boundaries between researcher and participant are blurred. We developed a novel visual consent method with illiterate artists in Nepal who conducted peer interviews in their communities. Artists discussed and sketched images related to ethical principles to create a visual consent form. This improved comprehension about research ethics and developed the confidence of artists to conduct peer-interviews, but we found that artists memorised the form; they did not engage participants in looking at the pictures with them; and they did not use the pictures that they disagreed with. In future research, the visuals should be developed in consultation with participants and be used to explain the study to participants. The tool development process can be used to establish a joint understanding about the research, its harms, and benefits, and to develop relational and iterative consent processes in participatory action research.

Type: Article
Title: Consent through art: a critique of a visual method developed with peer-researchers in southern Nepal
Open access status: An open access version is available from UCL Discovery
DOI: 10.1080/13645579.2023.2243140
Publisher version: https://doi.org/10.1080/13645579.2023.2243140
Language: English
Additional information: © 2023 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group. This is an Open Access article distributed under the terms of the Creative Commons Attribution-NonCommercial-NoDerivatives License (http:// creativecommons.org/licenses/by-nc-nd/4.0/).
UCL classification: UCL
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > Institute for Global Health
URI: https://discovery.ucl.ac.uk/id/eprint/10175354
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