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'I can't say that anything has changed': parents of autistic young people (16–25 years) discuss the impact of the Children and Families Act in England and Wales

Crane, Laura; Davies, Jade; Fritz, Anne; Portman, Kerrie; O'Brien, Sarah; Worsley, Alison; Remington, Anna; (2023) 'I can't say that anything has changed': parents of autistic young people (16–25 years) discuss the impact of the Children and Families Act in England and Wales. Frontiers in Education , 8 , Article 1250018. 10.3389/feduc.2023.1250018. Green open access

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Abstract

Introduction: In 2014, changes to special educational needs and disability (SEND) legislation were introduced in England and Wales. These reforms aimed for young people and their families to receive the help and support they need, have a say regarding their support needs, and achieve better outcomes. / Methods: We examine the views of parents of autistic young people (16–25 years) regarding the impact of the reforms, several years after their introduction. In total, 115 parents of autistic young people (16–25 years) in England and Wales took part in our research: 84 completed an online survey, one took part in an interview, and 30 participated in both the survey and interview. Quantitative data, collected via the online survey, were analyzed descriptively. Qualitative data, collected via the survey and interview, were analyzed using inductive thematic analysis. / Results: Parents overwhelmingly reported that their experiences had not improved since the introduction of the SEND reforms. This experience impacted their own, and their children’s, wellbeing. Parents felt that the reforms were simply delaying the inevitable, and there was still limited support for them or their children as they transitioned to adulthood. / Discussion: Despite promises of a radically different system, and the potential of these reforms, parents reported that little had changed for them or their children since the introduction of the Children and Families Act.

Type: Article
Title: 'I can't say that anything has changed': parents of autistic young people (16–25 years) discuss the impact of the Children and Families Act in England and Wales
Open access status: An open access version is available from UCL Discovery
DOI: 10.3389/feduc.2023.1250018
Publisher version: https://doi.org/10.3389/feduc.2023.1250018
Language: English
Additional information: Copyright © 2023 Crane, Davies, Fritz, Portman, O’Brien, Worsley and Remington. This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY) (http://creativecommons.org/licenses/by/4.0/). The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.
Keywords: autism, parents, policy, reform, post-16 education
UCL classification: UCL
UCL > Provost and Vice Provost Offices > School of Education
UCL > Provost and Vice Provost Offices > School of Education > UCL Institute of Education
UCL > Provost and Vice Provost Offices > School of Education > UCL Institute of Education > IOE - Psychology and Human Development
URI: https://discovery.ucl.ac.uk/id/eprint/10174475
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