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Psychosocial Risk Factors for Health-Related Quality of Life in Adult Congenital Heart Disease

Fteropoulli, Theodora; Tyagi, Manavi; Hirani, Shashivadan P; Kennedy, Fiona; Picaut, Nathalie; Cullen, Shay; Deanfield, John E; (2023) Psychosocial Risk Factors for Health-Related Quality of Life in Adult Congenital Heart Disease. Journal of Cardiovascular Nursing , 38 (1) pp. 70-83. 10.1097/JCN.0000000000000897. Green open access

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Abstract

Background: There is variability in the impact of adult congenital heart disease (ACHD) on health-related quality of life (HRQoL). A greater insight into the impact of ACHD may be gained from investigating HRQoL in various diagnostic groups and considering the importance of psychosocial risk factors for poor HRQoL. / Objective: We compared the HRQoL of people with ACHD with normative data from the general population and among 4 diagnostic groups and identified risk factors for poor HRQoL in ACHD from a comprehensive set of sociodemographic, clinical, and psychosocial factors. / Methods: We conducted a cross-sectional study with 303 participants from 4 diagnostic groups Simple, Tetralogy of Fallot, Transposition of the Great Arteries, Single Ventricle who completed measures of illness perceptions, coping, social support, mood, and generic and disease-specific HRQoL. Data were analyzed using 1-sample t tests, analysis of variance, and hierarchical multiple regressions. / Results: There was diminished psychosocial HRQoL in the Simple group compared with the general population. Consistently significant risk factors for poor HRQoL included younger age, a perception of more severe symptoms due to ACHD, depression, and anxiety. Clinical factors were poor predictors of HRQoL. / Conclusions: The findings highlight the need to develop intervention studies aiming to improve HRQoL in people with ACHD and the routine assessment of illness perceptions and mood problems during key periods in people's lives. This will help address patient misconceptions that could be tackled by clinicians or specialist nurses during routine outpatient appointments and identify people in need of psychological support.

Type: Article
Title: Psychosocial Risk Factors for Health-Related Quality of Life in Adult Congenital Heart Disease
Location: United States
Open access status: An open access version is available from UCL Discovery
DOI: 10.1097/JCN.0000000000000897
Publisher version: https://doi.org/10.1097/JCN.0000000000000897
Language: English
Additional information: This version is the author accepted manuscript. For information on re-use, please refer to the publisher’s terms and conditions.
Keywords: Heart Defects, Congenital; Quality of Life; Illness Perceptions; Depression; Anxiety
UCL classification: UCL
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > Institute of Cardiovascular Science
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > Institute of Cardiovascular Science > Clinical Science
URI: https://discovery.ucl.ac.uk/id/eprint/10174073
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