Henshall, David C;
Arzimanoglou, Alexis;
Dedeurwaerdere, Stefanie;
Guerrini, Renzo;
Jozwiak, Sergiusz;
Kokaia, Merab;
Lerche, Holger;
... Sisodiya, Sanjay M; + view all
(2023)
Shaping the future of European epilepsy research: Final meeting report from EPICLUSTER.
Epilepsy Research
, 189
, Article 107068. 10.1016/j.eplepsyres.2022.107068.
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Abstract
Collaboration is essential to the conduct of basic, applied and clinical research and its translation into the technologies and treatments urgently needed to improve the lives of people living with brain diseases and the health professionals who care for them. EPICLUSTER was formed in 2019 by the European Brain Research Area (EBRA) to support the coordination of epilepsy research in Europe. A key objective was to provide a platform to discuss shared research priorities by bringing together scientists and clinicians with multiple stakeholders including patient organisations and industry and the networks and infrastructures that provide healthcare and support research. Additional objectives were to facilitate access and sharing of data and biosamples, working together to ensure epilepsy is a priority for research funding, and embedding a culture of public and patient involvement (PPI) among epilepsy researchers. In this meeting report, we summarise the shared research priorities discussed by the leadership of EPICLUSTER at the recent final meeting. We also briefly review the discussion on patient and industry priorities, guidance on starting PPI for epilepsy researchers, and the sustainability of funding and infrastructures needed to ensure a comprehensive stakeholder-embedded community for epilepsy research.
| Type: | Article |
|---|---|
| Title: | Shaping the future of European epilepsy research: Final meeting report from EPICLUSTER |
| Location: | Netherlands |
| Open access status: | An open access version is available from UCL Discovery |
| DOI: | 10.1016/j.eplepsyres.2022.107068 |
| Publisher version: | https://doi.org/10.1016/j.eplepsyres.2022.107068 |
| Language: | English |
| Additional information: | This version is the author accepted manuscript. For information on re-use, please refer to the publisher’s terms and conditions. |
| Keywords: | Brain, Diagnosis, Epilepsy, Horizon Europe, Public Patient Involvement, Research agenda, Stakeholders, Therapeutics |
| UCL classification: | UCL UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences > UCL Queen Square Institute of Neurology UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences > UCL Queen Square Institute of Neurology > Clinical and Experimental Epilepsy |
| URI: | https://discovery.ucl.ac.uk/id/eprint/10165740 |
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