Chen, Yang;
Hosin, Ali A;
George, Marc J;
Asselbergs, Folkert W;
Shah, Anoop D;
(2023)
Digital technology and patient and public involvement (PPI) in routine care and clinical research-A pilot study.
PLoS One
, 18
(2)
, Article e0278260. 10.1371/journal.pone.0278260.
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Abstract
BACKGROUND: Patient and public involvement (PPI) has growing impact on the design of clinical care and research studies. There remains underreporting of formal PPI events including views related to using digital tools. This study aimed to assess the feasibility of hosting a hybrid PPI event to gather views on the use of digital tools in clinical care and research. METHODS: A PPI focus day was held following local procedures and published recommendations related to advertisement, communication and delivery. Two exemplar projects were used as the basis for discussions and qualitative and quantitative data was collected. RESULTS: 32 individuals expressed interest in the PPI day and 9 were selected to attend. 3 participated in person and 6 via an online video-calling platform. Selected written and verbal feedback was collected on two digitally themed projects and on the event itself. The overall quality and interactivity for the event was rated as 4/5 for those who attended in person and 4.5/5 and 4.8/5 respectively, for those who attended remotely. CONCLUSIONS: A hybrid PPI event is feasible and offers a flexible format to capture the views of patients. The overall enthusiasm for digital tools amongst patients in routine care and clinical research is high, though further work and standardised, systematic reporting of PPI events is required.
| Type: | Article |
|---|---|
| Title: | Digital technology and patient and public involvement (PPI) in routine care and clinical research-A pilot study |
| Location: | United States |
| Open access status: | An open access version is available from UCL Discovery |
| DOI: | 10.1371/journal.pone.0278260 |
| Publisher version: | https://doi.org/10.1371/journal.pone.0278260 |
| Language: | English |
| Additional information: | © 2023 Chen et al. This is an open access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0/). |
| Keywords: | Humans, Pilot Projects, Digital Technology, Patient Participation, Research Design |
| UCL classification: | UCL UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > Institute of Health Informatics |
| URI: | https://discovery.ucl.ac.uk/id/eprint/10164653 |
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