UCL Discovery
UCL home » Library Services » Electronic resources » UCL Discovery

"I have failed to separate my HIV from this pain": the challenge of managing chronic pain among people with HIV

Baker, V; Nkhoma, K; Trevelion, R; Roach, A; Winston, A; Sabin, C; Bristowe, K; (2021) "I have failed to separate my HIV from this pain": the challenge of managing chronic pain among people with HIV. AIDS Care 10.1080/09540121.2020.1869148. (In press). Green open access

[thumbnail of Sabin_AIDS CARE Main Document.pdf]
Preview
Text
Sabin_AIDS CARE Main Document.pdf

Download (186kB) | Preview

Abstract

Pain is a highly prevalent and burdensome symptom among people with HIV (PWH). This study aims to identify how the experience of living with HIV and chronic pain influences pain beliefs, health-seeking and pain management. Thirty-nine purposively sampled PWH with chronic pain (sample characteristics = 61% women, 79% Black, Asian and minority ethnic groups, 18% men who have sex with men, 45-54 median age category) participated in focus groups in London. Focus groups were co-facilitated with community members. Transcripts wereanalysed using a thematic approach. Findings revealed that HIV stigma, fractured care pathways, and general practitioners' lack of HIV training are barriers to supported pain management. Unaddressed pain results in poorer mental health and reduced quality of life, which has important clinical implications for HIV treatment adherence. Creating HIV-specific pain resources, activating social networks, and pain self-management techniques are potential solutions. Person-centred assessment and HIV training is needed to help clinicians identify PWH with chronic pain. Clear guidelines need to be developed to identify which health service providers are responsible for chronic pain management in PWH. This study generated a refined version of the Fear Avoidance Model that introduces a dimension of HIV-specific behaviours that impact PWHs seeking chronic pain management.

Type: Article
Title: "I have failed to separate my HIV from this pain": the challenge of managing chronic pain among people with HIV
Location: England
Open access status: An open access version is available from UCL Discovery
DOI: 10.1080/09540121.2020.1869148
Publisher version: https://doi.org/10.1080/09540121.2020.1869148
Language: English
Additional information: This version is the author accepted manuscript. For information on re-use, please refer to the publisher’s terms and conditions.
Keywords: Fear Avoidance Model, HIV, HIV stigma, chronic pain, health seeking behaviour, pain behaviour
UCL classification: UCL
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > Institute for Global Health
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > UCL GOS Institute of Child Health
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > Institute for Global Health > Infection and Population Health
URI: https://discovery.ucl.ac.uk/id/eprint/10163905
Downloads since deposit
144Downloads
Download activity - last month
Download activity - last 12 months
Downloads by country - last 12 months

Archive Staff Only

View Item View Item