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Phenomenology of gender dysphoria in autism: a multiperspective qualitative analysis

Cooper, Kate; Mandy, William; Butler, Catherine; Russell, Ailsa; (2022) Phenomenology of gender dysphoria in autism: a multiperspective qualitative analysis. The Journal of Child Psychology and Psychiatry 10.1111/jcpp.13691. (In press). Green open access

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Abstract

BACKGROUND: Autistic people are overrepresented in gender clinic settings, but limited evidence is available to guide clinical decision making for this patient group. We aimed to generate a comprehensive understanding of the phenomenology of gender dysphoria in autistic people. METHODS: We conducted a multi-perspectival interpretative phenomenological analysis (IPA), from five different perspectives; autistic young people and adults with experience of gender dysphoria, parents of young people, and clinicians working with autistic people with gender dysphoria in both adult and young person settings (n = 68). RESULTS: IPA analysis resulted in two themes, 'discovering gender identity' and 'the complexities of moving towards gender comfort'. Participants agreed that there was often an interaction between gender dysphoria and features of autism such as sensory sensitivities. There was relative consensus across groups about the need for autism adaptations to be made in gender clinics. Autistic adults were more likely to see autism as an important identity than young people, but both groups were clear that autism did not impair their understanding of gender. In contrast, some parents and clinicians working with young people expressed concern that autism did impact self-understanding. DISCUSSION: While the groups tended to agree on the ways in which particular features of autism can compound gender dysphoria, there were a range of perspectives on the ways in which autism impacted on self-knowledge. CONCLUSION: Recommendations for adaptations when working with autistic people with gender dysphoria are presented.

Type: Article
Title: Phenomenology of gender dysphoria in autism: a multiperspective qualitative analysis
Location: England
Open access status: An open access version is available from UCL Discovery
DOI: 10.1111/jcpp.13691
Publisher version: https://doi.org/10.1111/jcpp.13691
Language: English
Additional information: © 2022 The Authors. Journal of Child Psychology and Psychiatry published by John Wiley & Sons Ltd on behalf of Association for Child and Adolescent Mental Health. This is an open access article under the terms of the Creative Commons Attribution License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.
Keywords: Social Sciences, Science & Technology, Life Sciences & Biomedicine, Psychology, Developmental, Psychiatry, Psychology, Autism spectrum disorders, gender identity, gender dysphoria, adolescence, SPECTRUM DISORDER, QUESTIONNAIRE, EXPERIENCES, DEPRESSION
UCL classification: UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences > Div of Psychology and Lang Sciences > Clinical, Edu and Hlth Psychology
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences
UCL
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences > Div of Psychology and Lang Sciences
URI: https://discovery.ucl.ac.uk/id/eprint/10156067
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