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Determinants in parents’ decision to use blended diets with gastrostomy-fed children and young people: A mixed methods study

Breaks, Anne; Bloch, Steven; Smith, Christina; (2022) Determinants in parents’ decision to use blended diets with gastrostomy-fed children and young people: A mixed methods study. Clinical Nutrition ESPEN , 51 pp. 288-294. 10.1016/j.clnesp.2022.08.013. Green open access

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Abstract

Background: Children fed via a gastrostomy are provided with commercial produced formula feeds. They are not offered blended diet (BD) as an alternative, and it is not formally supported in the UK due to concerns regarding nutritional content, contamination and tube blockages. Despite this increasing numbers of families are opting to use BD. Objective: To discover why parents opt to use of BD with their children and young people who are fed via gastrostomy. Method: This mixed methods study comprised a qualitative phase of 18 in-depth interviews with parents who were using BD with their child. The quantitative phase comprised a survey of 208 parents, 140 of whom used BD and 68 did not use BD. Results: The in-depth interviews identified four overarching themes that influenced parents’ decision to use BD; loss, conflict, empowerment and quality of life. Responses from the survey revealed differences between those who did and did not use BD in levels of self-efficacy, views about formula feeds, rating of their child’s health and stools. Conclusion: Concerns about formula feeds and less perceived need for it are key determiners in parents’ decision to use BD. These views are influenced by social constructs and individual beliefs and circumstances. Those using BD were more likely to rate their child’s stools as being normal and rated their child’s health more highly than those not using BD.

Type: Article
Title: Determinants in parents’ decision to use blended diets with gastrostomy-fed children and young people: A mixed methods study
Open access status: An open access version is available from UCL Discovery
DOI: 10.1016/j.clnesp.2022.08.013
Publisher version: https://doi.org/10.1016/j.clnesp.2022.08.013
Language: English
Additional information: This version is the author accepted manuscript. For information on re-use, please refer to the publisher’s terms and conditions.
Keywords: Blended diet, Gastrostomy, Enteral feeding, Parental attitudes, Well-being, Mixed methodology
UCL classification: UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences > Div of Psychology and Lang Sciences > Language and Cognition
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences
UCL
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences > Div of Psychology and Lang Sciences
URI: https://discovery.ucl.ac.uk/id/eprint/10153682
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