Kankinza, Njinga; (2022) Knowledge, attitudes, and stigma relating to rarer dementias among members of the general public in an international cohort. Doctoral thesis (D.Clin.Psy), UCL (University College London).

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Abstract

Part one presents a conceptual introduction reviewing the literature on dementia related knowledge, attitudes, and stigma among the general public, and discusses the implications for the less common forms of dementia. This thesis is a study within the studies of the Rare Dementia Support (RDS) Impact study: a 5-year programme of research exploring the impact of multicomponent support groups for those living with rare dementias. It is a collaboration between University College London (UCL), Bangor University and Nipissing University in Canada (http://www.raredementiasupport.org/research/) and is joint funded by the Economic & Social Research Council (ESRC) and National Institute for Health Research (NIHR) and ethical approval for the study was granted by UCL Ethics Committee (Reference: Project ID: 8545/004). The presented thesis is my own work, supervised by Dr. Joshua Scott Yes. I was involved in the design of the study, completed the data collection and analysis independently with exception for the following contributors: • Emilie Brotherhood involved in the ethical approval amendment and applications for this thesis. • Joanna Stroud (Head of Online Learning at UCL) who set the study’ surveys up on Future Learn the open education platform which houses The Many Faces of Dementia Massive Open Online Course. Joanna also linked the Surveys to Qualtrics.

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