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Goal-based measurement in paediatric settings: implications for practice

Jacob, Jenna; Edbrooke-Childs, Julian; Flannery, Halina; Segal, Terry Y; Law, Duncan; (2022) Goal-based measurement in paediatric settings: implications for practice. Archives of Disease in Childhood 10.1136/archdischild-2021-322761. (In press). Green open access

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Abstract

There is an observed link between physical illness and mental health difficulties and an increased likelihood of mental health difficulties in young people with chronic health conditions. The main outcome focus in paediatric settings is on physical health outcomes and functioning. In terms of functioning, the focus is on quality of life, measures of emotional well-being and perceptions of personal change, which are likely to be multifaceted and vary between patients. To complement standardised and diagnostically based measures, goal-based outcome measurement may be considered. The aim of this paper is to build on previous research, to provide a reflective commentary based on the authors’ clinical and research experience in the use and interpretation of goal-based outcomes, to address what using goal-based measures for outcome purposes in these settings means practically. Examples are provided to demonstrate the importance of considering meaningful outcomes of importance to young people and how professionals may presume that physical ‘recovery’ is the goal of treatment, but what recovery means to that young person may be very nuanced. Further key considerations and suggested phrasing are given to introduce and work with young people’s goals.

Type: Article
Title: Goal-based measurement in paediatric settings: implications for practice
Location: England
Open access status: An open access version is available from UCL Discovery
DOI: 10.1136/archdischild-2021-322761
Publisher version: http://dx.doi.org/10.1136/archdischild-2021-322761
Language: English
Additional information: This version is the author accepted manuscript. For information on re-use, please refer to the publisher's terms and conditions.
Keywords: child health services, mental health, paediatrics, psychology
UCL classification: UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences > Div of Psychology and Lang Sciences > Clinical, Edu and Hlth Psychology
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences
UCL
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences > Div of Psychology and Lang Sciences
URI: https://discovery.ucl.ac.uk/id/eprint/10150541
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