Scott, Hannah May;
Coombes, Lucy;
Braybrook, Debbie;
Roach, Anna;
Harðardóttir, Daney;
Bristowe, Katherine;
Ellis-Smith, Clare;
... Harding, Richard; + view all
(2022)
COVID-19: impact on pediatric palliative care.
Journal of Pain and Symptom Management
10.1016/j.jpainsymman.2022.02.330.
(In press).
Preview |
Text
COVID-19 impact on pediatric palliative care.pdf - Published Version Download (153kB) | Preview |
Abstract
CONTEXT: Children and young people (CYP) with life-limiting or life-threatening conditions (LLLTC) and their families are potentially vulnerable during COVID-19 lockdowns due to pre-existing high clinical support needs and social participation limitations. OBJECTIVES: To explore the impact of the COVID-19 pandemic and lockdowns on this population. METHODS: Sub-analysis of an emergent COVID-19 related theme from a larger semi-structured interview study investigating priority pediatric palliative care outcomes. 106 UK-wide purposively-sampled CYP with LLLTC, parent/carers, siblings, health professionals and commissioners. RESULTS: COVID-19 was raised by participants in 12/44 interviews conducted after the UK's first confirmed COVID-19 case. Key themes included loss of vital social support, disruption to services important to families, and additional psychological distress. CONCLUSIONS: Continued delivery of child- and family-centred palliative care requires innovative assessment and delivery of psycho-social support. Disruptions within treatment and care providers may compound support needs, requiring co-ordination for families facing multi-agency delays.
| Type: | Article |
|---|---|
| Title: | COVID-19: impact on pediatric palliative care |
| Location: | United States |
| Open access status: | An open access version is available from UCL Discovery |
| DOI: | 10.1016/j.jpainsymman.2022.02.330 |
| Publisher version: | https://doi.org/10.1016/j.jpainsymman.2022.02.330 |
| Language: | English |
| Additional information: | This version is the version of record. For information on re-use, please refer to the publisher's terms and conditions. |
| Keywords: | COVID-19, Palliative care, Pediatrics |
| UCL classification: | UCL UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > UCL GOS Institute of Child Health > Population, Policy and Practice Dept UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > UCL GOS Institute of Child Health UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences |
| URI: | https://discovery.ucl.ac.uk/id/eprint/10145861 |
Archive Staff Only
 |
View Item |
