Gilchrist, Katie;
Vindrola-Padros, Cecilia;
(2022)
Advocating for carers: a qualitative study exploring the needs of UK carers of patients with an acoustic neuroma.
International Journal of Care and Caring
10.1332/239788221x16432145729095.
(In press).
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Abstract
Research on the impact of caring for patients with an acoustic neuroma is scarce. Findings from 12 interviews with primary carers of this patient population highlight six key themes: life disruption, support, well-being, the carer role, lessons learned and the impact of COVID-19. Carers need more practical information and emotional support, starting from the diagnosis stage through to recovery. Recommendations include routine carer assessments, early signposting to auxiliary services and information materials about recovery. This study contributes to the UK literature gap of this under-studied population and demonstrates the importance of carer assessments, as set out in the Carers Act 2014.
| Type: | Article |
|---|---|
| Title: | Advocating for carers: a qualitative study exploring the needs of UK carers of patients with an acoustic neuroma |
| Open access status: | An open access version is available from UCL Discovery |
| DOI: | 10.1332/239788221x16432145729095 |
| Publisher version: | https://doi.org/10.1332/239788221X16432145729095 |
| Language: | English |
| Additional information: | This article is distributed under the terms of the Creative Commons Attribution 4.0 license (http://creativecommons.org/licenses/cc-by/4.0/) which permits adaptation, alteration, reproduction and distribution without further permission provided the original work is attributed. The derivative works do not need to be licensed on the same terms. |
| Keywords: | acoustic neuroma; carer needs; informal carers; non-malignant brain tumour |
| UCL classification: | UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Medical Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Medical Sciences > Div of Surgery and Interventional Sci > Department of Targeted Intervention UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences UCL UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Medical Sciences > Div of Surgery and Interventional Sci |
| URI: | https://discovery.ucl.ac.uk/id/eprint/10144849 |
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