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The social course of fibromyalgia: resisting processes of marginalisation

Brown, N; (2022) The social course of fibromyalgia: resisting processes of marginalisation. International Journal of Environmental Research and Public Health , 19 (1) , Article 333. 10.3390/ijerph19010333. Green open access

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Abstract

This sociological article reports an empirical study into the lived experience of fibromyalgia. It includes 28 participants (26 women, 2 men) with a formal diagnosis of fibromyalgia. Data collection consisted of the completion of an identity box project and subsequent interviews. Data analysis followed the principles of iterative, inductive, semantic thematic analysis, and led to the identification of four major themes: the role of the social in making sense of the experience, the process of redefining lifegoals, the refusal to accept fibromyalgia as a diagnosis, and the consideration of identifying as a patient. These themes in turn demonstrate four forms of resistance against processes of marginalisation amongst those who have been diagnosed with fibromyalgia: (1) the incorporation of societal expectations and norms into their life-stories; (2) the re-making the lifeworld at a cerebral level through redefining reality and creating a new, socially acceptable reality; (3) the active rejection of the fibromyalgia diagnosis; and (4) the employment of active and pro-active countermeasures to assuming the sick role.

Type: Article
Title: The social course of fibromyalgia: resisting processes of marginalisation
Open access status: An open access version is available from UCL Discovery
DOI: 10.3390/ijerph19010333
Publisher version: https://doi.org/10.3390/ijerph19010333
Language: English
Additional information: This is an open access article distributed under the Creative Commons Attribution License which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited
Keywords: illness experience; fibromyalgia; UK; resistance; marginalisation; fibromyalgia syndrome; interviews; metaphorical understanding; embodiment
UCL classification: UCL
UCL > Provost and Vice Provost Offices > UCL SLASH
UCL > Provost and Vice Provost Offices > UCL SLASH > Faculty of Arts and Humanities
UCL > Provost and Vice Provost Offices > UCL SLASH > Faculty of Arts and Humanities > Arts and Sciences (BASc)
URI: https://discovery.ucl.ac.uk/id/eprint/10140801
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