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Relating to People Living with Dementia as Equals

Carter, Matilda Rebecca; (2021) Relating to People Living with Dementia as Equals. Doctoral thesis (Ph.D), UCL (University College London).

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Matilda Carter - Relating to People Living with Dementia as Equals - PhD Thesis Final.pdf - Accepted Version
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Abstract

As populations around the globe grow older, a greater number of people are becoming susceptible to the diseases and chronic illnesses associated with age. Recent international studies concur that, of these, dementia is either the most feared by the general population, or among the most. It is no small wonder, then, that analytic philosophy in the Anglo-American tradition on dementia repeatedly invokes what Rebecca Dresser calls the “tragedy narrative.” So understood, arguments about dementia rely on the idea that a life lived with it represents an unfortunate and intolerable indignity. There is, however, an alternative narrative present in the work of dementia self- advocates, which suggests that dementia can be considered as what Elizabeth Barnes calls a mere difference. So understood, we can think of people living with dementia as a distinct social group who experience life in just one of many of the ways human diversity offers. Proceeding from the tragedy narrative, the notion of justice for people living with dementia might focus on compensating or insuring people against this loss of dignity. The mere difference narrative, on the other hand, invites us to consider what would be necessary for people living with dementia to be fully integrated into society and for the distinctive kind of life they experience to be treated with respect. This thesis considers the question of justice for people living with dementia on these terms.

Type: Thesis (Doctoral)
Qualification: Ph.D
Title: Relating to People Living with Dementia as Equals
Event: UCL (University College London)
Language: English
Additional information: Copyright © The Author 2021. Original content in this thesis is licensed under the terms of the Creative Commons Attribution-NonCommercial 4.0 International (CC BY-NC 4.0) Licence (https://creativecommons.org/licenses/by-nc/4.0/). Any third-party copyright material present remains the property of its respective owner(s) and is licensed under its existing terms. Access may initially be restricted at the author’s request.
UCL classification: UCL
UCL > Provost and Vice Provost Offices > UCL SLASH
UCL > Provost and Vice Provost Offices > UCL SLASH > Faculty of S&HS
URI: https://discovery.ucl.ac.uk/id/eprint/10138270
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