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Community engagement and vulnerability in infectious diseases: A systematic review and qualitative analysis of the literature

Osborne, J; Paget, J; Giles-Vernick, T; Kutalek, R; Napier, D; Baliatsas, C; Dückers, M; (2021) Community engagement and vulnerability in infectious diseases: A systematic review and qualitative analysis of the literature. Social Science & Medicine , 284 , Article 114246. 10.1016/j.socscimed.2021.114246. Green open access

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Abstract

The global response to infectious diseases has seen a renewed interest in the use of community engagement to support research and relief efforts. From a perspective rooted in the social sciences, the concept of vulnerability offers an especially useful analytical frame for pursuing community engagement in a variety of contexts. However, few have closely examined the concept of vulnerability in community engagement efforts, leading to a need to better understand the various theories that underline the connections between the two. This literature review searched four databases (covering a total of 537 papers), resulting in 15 studies that analyze community engagement using a framing of vulnerability, broadly defined, in the context of an infectious disease, prioritizing historical and structural context and the many ways of constituting communities. The review identified historical and structural factors such as trust in the health system, history of political marginalization, various forms of racism and discrimination, and other aspects of vulnerability that are part and parcel of the main challenges faced by communities. The review found that studies using vulnerability within community engagement share some important characteristics (e.g., focus on local history and structural factors) and identified a few theoretical avenues from the social sciences which integrate a vulnerability-informed approach in community engagement. Finally, the review proposes an approach that brings together the concepts of vulnerability and community engagement, prioritizing participation, empowerment, and intersectoral collaboration.

Type: Article
Title: Community engagement and vulnerability in infectious diseases: A systematic review and qualitative analysis of the literature
Location: England
Open access status: An open access version is available from UCL Discovery
DOI: 10.1016/j.socscimed.2021.114246
Publisher version: https://www.doi.org/10.1016/j.socscimed.2021.11424...
Language: English
Additional information: This work is licensed under a Creative Commons Attribution 4.0 International License. The images or other third party material in this article are included in the Creative Commons license, unless indicated otherwise in the credit line; if the material is not included under the Creative Commons license, users will need to obtain permission from the license holder to reproduce the material. To view a copy of this license, visit http://creativecommons.org/licenses/by/4.0/
Keywords: Community engagement, Global health, Infectious diseases, Interventions, Participation, Vulnerability
UCL classification: UCL
UCL > Provost and Vice Provost Offices > UCL SLASH
UCL > Provost and Vice Provost Offices > UCL SLASH > Faculty of S&HS
UCL > Provost and Vice Provost Offices > UCL SLASH > Faculty of S&HS > Dept of Anthropology
URI: https://discovery.ucl.ac.uk/id/eprint/10132685
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