Lambert, B;
Lightfoot, K;
Meskell, R;
Whiteley, VJ;
Martin-Mcgill, KJ;
Schoeler, NE;
(2021)
Keto-on-the-clock: A survey of dietetic care contact time taken to provide ketogenic diets for drug-resistant epilepsy in the UK.
Nutrients
, 13
(8)
, Article 2484.. 10.3390/nu13082484.
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Schoeler_Keto-on-the-clock- A survey of dietetic care contact time taken to provide ketogenic diets for drug-resistant epilepsy in the UK_VoR.pdf - Published Version Download (585kB) | Preview |
Abstract
Medical ketogenic diets (KDs) are effective yet resource-intensive treatment options for drug-resistant epilepsy (DRE). We investigated dietetic care contact time, as no recent data exist. An online survey was circulated to ketogenic dietitians in the UK and Ireland. Data were collected considering feeding route, KD variant and type of ketogenic enteral feed (KEF), and the estimated number of hours spent on patient-related activities during the patient journey. Fifteen dietitians representing nine KD centres responded. Of 335 patients, 267 (80%) were 18 years old or under. Dietitians spent a median of 162 h (IQR 54) of care contact time per patient of which a median of 48% (IQR 6) was direct contact. Most time was required for the classical KD taken orally (median 193 h; IQR 213) as a combined tube and oral intake (median 211 h; IQR 172) or a blended food KEF (median 189 h; IQR 148). Care contact time per month was higher for all KDs during the three-month initial trial compared to the two-year follow-up stage. Patients and caregivers with characteristics such as learning or language difficulties were identified as taking longer. Twelve out of fifteen (80%) respondents managed patients following the KD for more than two years, requiring an estimated median contact care time of 2 h (IQR 2) per patient per month. Ten out of fifteen (67%) reported insufficient official hours for dietetic activities. Our small survey gives insight into estimated dietetic care contact time, with potential application for KD provision and service delivery.
| Type: | Article |
|---|---|
| Title: | Keto-on-the-clock: A survey of dietetic care contact time taken to provide ketogenic diets for drug-resistant epilepsy in the UK |
| Open access status: | An open access version is available from UCL Discovery |
| DOI: | 10.3390/nu13082484 |
| Publisher version: | https://doi.org/10.3390/nu13082484 |
| Language: | English |
| Additional information: | This work is licensed under a Creative Commons Attribution 4.0 International License. The images or other third party material in this article are included in the Creative Commons license, unless indicated otherwise in the credit line; if the material is not included under the Creative Commons license, users will need to obtain permission from the license holder to reproduce the material. To view a copy of this license, visit http://creativecommons.org/licenses/by/4.0/ |
| Keywords: | ketogenic diets; dietitian; drug-resistant epilepsy; patient contact; time; dietetic management |
| UCL classification: | UCL UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > UCL GOS Institute of Child Health UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > UCL GOS Institute of Child Health > Developmental Neurosciences Dept |
| URI: | https://discovery.ucl.ac.uk/id/eprint/10132455 |
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