O'Donovan, C;
Smallman, M;
Wilson, J;
(2021)
Consultation on the Data Saves Lives strategy: Written evidence submitted by the UK Pandemic Ethics Accelerator’s Data-Use workstream.
UK Pandemic Ethics Accelerator
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O'Donovan et al 2021 FINAL Data Saves Lives submission from the UK Pandemic Ethics Accelerator Date use workstream.pdf Access restricted to UCL open access staff Download (298kB) |
Abstract
In this submission we provide observations that may augment aspects of the Data Saves Lives (DSL) strategy from a data ethics perspective. In doing so, we pay particular attention to the complexity and scales across which data in the health and social care sectors operates, and the social, institutional and governance contexts of data. We welcome the ambition and timing of the strategy. Improved data quality, data flows and practices of data use are a necessary pre-condition of broader plans to improve health care and social care in England. Improved data infrastructures are also critical for continued covid-19 mitigation policies and for improving the health and well-being of people in the UK in the long-term. In this submission we identify some specific points at which interventions along these lines may be met with success or are particularly urgent. We believe by augmenting DSL with a map of the data terrain will enable the Department of Health and Social Care (DHSC) to better steer progress towards commonly identified goals in addition to accelerating towards promising directions of data innovation.
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