UCL Discovery
UCL home » Library Services » Electronic resources » UCL Discovery

Parents' experiences of care offered after stillbirth: An international online survey of high and middle-income countries.

Horey, D; Boyle, FM; Cassidy, J; Cassidy, PR; Erwich, JJHM; Gold, KJ; Gross, MM; ... Flenady, V; + view all (2021) Parents' experiences of care offered after stillbirth: An international online survey of high and middle-income countries. Birth 10.1111/birt.12546. (In press).

[thumbnail of Parents experiences of care offered after stillbirth_Final.pdf] Text
Parents experiences of care offered after stillbirth_Final.pdf - Accepted version
Access restricted to UCL open access staff until 19 March 2022.

Download (157kB)

Abstract

BACKGROUND: Stillbirth, the death of a baby before birth, is associated with significant psychological and social consequences that can be mitigated by respectful and supportive bereavement care. The absence of high-level evidence to support the broad scope of perinatal bereavement practices means that offering a range of options identified as valued by parents has become an important indicator of care quality. This study aimed to describe bereavement care practices offered to parents across different high-income and middle-income countries. METHODS: An online survey of parents of stillborn babies was conducted between December 2014 and February 2015. Frequencies of nine practices were compared between high-income and middle-income countries. Differences in proportions of reported practices and their associated odds ratios were calculated to compare high-income and middle-income countries. RESULTS: Over three thousand parents (3041) with a self-reported stillbirth in the preceding five years from 40 countries responded. Fifteen countries had atleast 40 responses. Significant differences in the prevalence of offering nine bereavement care practices were reported by women in high-income countries (HICs) compared with women in middle-income countries (MICs). All nine practices were reported to occur significantly more frequently by women in HICs, including opportunity to see and hold their baby (OR = 4.8, 95% CI 4.0-5.9). The widespread occurrence of all nine practices was reported only for The Netherlands. CONCLUSIONS: Bereavement care after stillbirth varies between countries. Future research should look at why these differences occur, their impact on parents, and whether differences should be addressed, particularly how to support effective communication, decision-making, and follow-up care.

Type: Article
Title: Parents' experiences of care offered after stillbirth: An international online survey of high and middle-income countries.
Location: United States
DOI: 10.1111/birt.12546
Publisher version: https://doi.org/10.1111/birt.12546
Language: English
Additional information: This version is the author accepted manuscript. For information on re-use, please refer to the publisher’s terms and conditions.
Keywords: Bereavement care, high-income countries, middle-income countries, parents, stillbirth
UCL classification: UCL
UCL > Provost and Vice Provost Offices
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > UCL EGA Institute for Womens Health
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > UCL EGA Institute for Womens Health > Maternal and Fetal Medicine
URI: https://discovery.ucl.ac.uk/id/eprint/10124952
Downloads since deposit
1Download
Download activity - last month
Download activity - last 12 months
Downloads by country - last 12 months

Archive Staff Only

View Item View Item