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International consensus on quality indicators for comprehensive assessment of dementia in young adults using a modified e-Delphi approach

O'Malley, M; Parkes, J; Stamou, V; La Fontaine, J; Oyebode, J; Carter, J; (2020) International consensus on quality indicators for comprehensive assessment of dementia in young adults using a modified e-Delphi approach. International Journal of Geriatric Psychiatry , 35 (11) pp. 1309-1321. 10.1002/gps.5368. Green open access

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Abstract

OBJECTIVE: To develop guidance for clinicians about essential elements that can support clinical decision-making in the diagnostic workup of young onset dementia. METHODS/DESIGN: Three iterations of a modified e-Delphi consensus survey comprising 23 international expert clinicians specialising in diagnosis of young onset dementia. OUTCOME MEASURES: A priori consensus was pre-defined as 80% of experts ranking statements in the upper threshold on a seven-point Likert scale that ranged from "not important at all" to "absolutely essential" to diagnosis. RESULTS: 80% consensus was reached on 48 statements that were rated as 'absolutely essential' or "very important" to a comprehensive assessment of dementia in a younger adult. In order to inform a subsequent audit of clinical records in which compliance with these statements was assessed, the statements were divided into a Minimum Standard, (consisting of the 15 statements voted by all experts as being "absolutely essential" or "very important") and a Gold Standard where 48 statements were voted by 80% of the experts as being 'absolutely essential' or 'very important'. The expert's response rate across the three rounds was 91.3%. CONCLUSION: A minimum standard and gold standard have been created for the diagnostic workup of young onset dementia. The standards provide a clinically useful tool for decision-making particularly for generalists and those with less experience in the field. The standards will be used to inform a UK case note audit of recently diagnosed patients with YOD.

Type: Article
Title: International consensus on quality indicators for comprehensive assessment of dementia in young adults using a modified e-Delphi approach
Location: England
Open access status: An open access version is available from UCL Discovery
DOI: 10.1002/gps.5368
Publisher version: https://doi.org/10.1002/gps.5368
Language: English
Additional information: This is an open access article under the CC BY license (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
Keywords: Delphi study, diagnosis, expert consensus, quality indicators, standards, young onset dementia
UCL classification: UCL
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences > Division of Psychiatry
URI: https://discovery.ucl.ac.uk/id/eprint/10103141
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