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Validity and reliability of the Mouth Handicap of Systemic Sclerosis questionnaire in a UK population

Abdouh, IM; Porter, S; Fedele, S; Ni Riordain, R; (2020) Validity and reliability of the Mouth Handicap of Systemic Sclerosis questionnaire in a UK population. Journal of Oral Pathology and Medicine , 49 (10) pp. 986-993. 10.1111/jop.13060. Green open access

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Abstract

BACKGROUND: The objective of this study was to explore the psychometric properties of the Mouth Handicap in Systemic Sclerosis (MHISS) specifically exploring aspects of validity and reliability of MHISS in UK SSc patients. METHODS: 150 questionnaires were distributed in this study at the Oral Medicine Department of UCLHT Eastman Dental Hospital, the Outpatient Rheumatology Clinic of the Royal Free Hospital and Scleroderma Family Day. Participants were asked to complete three questionnaires (SF-36, OHIP-14 and MHISS) along with a proforma of demographic and disease-specific questions. Both convergent validity and internal consistency reliability were examined. The convergent validity was assessed by the Spearman's correlation coefficient and internal consistency reliability was assessed by Cronbach's alpha RESULTS: Of the 150 questionnaires distributed to participants, 68 respondents included. With regard to construct validity, a low to moderate degree of convergent validity was found between MHISS total score and all SF-36 subscales. However, the total MHISS score was highly correlated to all OHIP subscales. CONCLUSION: MHISS questionnaire is a self-administered patient-reported outcome measure that assesses the mouth disability in SSc patients. However, improving the global and oral health of SSc patients is important as there is no cure for the disease thus instruments that record the impact of the condition and indicate the effect of treatment on the lives of patients are of paramount importance. Current results demonstrate good preliminary psychometric properties (validity and reliability) in a UK population with further exploration of psychometric properties with an emphasis on interpretability required.

Type: Article
Title: Validity and reliability of the Mouth Handicap of Systemic Sclerosis questionnaire in a UK population
Location: Denmark
Open access status: An open access version is available from UCL Discovery
DOI: 10.1111/jop.13060
Publisher version: http://dx.doi.org/10.1111/jop.13060
Language: English
Additional information: This version is the author accepted manuscript. For information on re-use, please refer to the publisher’s terms and conditions.
Keywords: Oral health, Outcome measures, Quality of life, Systemic sclerosis
UCL classification: UCL
UCL > Provost and Vice Provost Offices
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Medical Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Medical Sciences > Eastman Dental Institute
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Medical Sciences > Eastman Dental Institute > EDI MaxFac, Diagnostic, Med and Surg Sci
URI: https://discovery.ucl.ac.uk/id/eprint/10101734
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