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People with dementia and carers online discussing surveillance

Vermeer, Y; van Santen, J; Charlesworth, G; Higgs, P; (2020) People with dementia and carers online discussing surveillance. Journal of Enabling Technologies 10.1108/jet-07-2019-0032. (In press). Green open access

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Abstract

PURPOSE: This paper aims to interrogate online comments from consumers with dementia and family carers on surveillance technology products used by or for people with dementia. DESIGN/METHODOLOGY/APPROACH: A naturalistic, observational study of qualitative posts (N = 120) by people with dementia (n = 7) and family carers (n = 38) to discussion threads on surveillance technology (ST), hosted by an online dementia support forum in the Netherlands. Kozinet’s (2002) typology was used to describe respondent characteristics, and comments on features of ST products were analysed within a pre-existing framework. FINDINGS: Forum users were mainly “tourists” interested in ST, with some “insiders” interested in sharing experiences of ST use. They expressed a lack of trust in information from marketers and providers to the experience of being provided with poor information. Consumer-to-consumer comments on products triangulated with previous face-to-face qualitative studies. Carers prioritised “peace of mind” through location monitoring. In contrast, people with dementia prioritised user-friendliness (simple, with capability and compatible with daily routines). PRACTICAL IMPLICATIONS: Using online discussions of ST products provides a rapid approach to understanding current consumer needs and preferences in the ever-changing world of technology. ORIGINALITY/VALUE: No previous study is known to have explored the views of carers and people with dementia in online discussions about ST.

Type: Article
Title: People with dementia and carers online discussing surveillance
Open access status: An open access version is available from UCL Discovery
DOI: 10.1108/jet-07-2019-0032
Publisher version: https://doi.org/10.1108/jet-07-2019-0032
Language: English
Additional information: This version is the author accepted manuscript. For information on re-use, please refer to the publisher's terms and conditions.
Keywords: Netnography, Needs, People living with dementia, Family carers, Online discussions, Surveillance technology
UCL classification: UCL
UCL > Provost and Vice Provost Offices
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences > Div of Psychology and Lang Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences > Div of Psychology and Lang Sciences > Clinical, Edu and Hlth Psychology
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences > Division of Psychiatry
URI: https://discovery.ucl.ac.uk/id/eprint/10095447
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