Sturgeon, K;
Castro, H;
Le Prevost, M;
Thompson, L;
Chappell, E;
Foster, C;
Rowson, K;
... Judd, A; + view all
(2020)
Experiences of transition to adult care and readiness to self-manage care in young people with perinatal HIV in England.
HIV Nursing
, 20
(1)
pp. 8-14.
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Abstract
BACKGROUND: There are few data on young people’s own experiences of transferring from paediatric to adult care, or readiness to self-manage care. METHODS: 132 young people living with perinatal HIV aged 14-25 years answered questions about transition experiences. RESULTS: 45 (34%) were in paediatric care (median age 16 [IQR 16,17] years), of whom 89% reported that transition discussions had begun, at median age 15 [14,16] years. Young people in adult care were more likely than those in paediatric care to self-manage appointments (90% vs 42% respectively, p<0.001), and know their ART drugs (55% vs 37%, p=0.033). Knowledge of most recent CD4/viral load was slightly better for those in adult care (48% vs 31%, p=0.059); naming side effects of ART was similar (71% vs 60%, p=0.119). CONCLUSIONS: Transition discussions occurred before movement from paediatric to adult care. Further education around ART, potential side effects, and CD4/viral load knowledge is required.
| Type: | Article |
|---|---|
| Title: | Experiences of transition to adult care and readiness to self-manage care in young people with perinatal HIV in England |
| Open access status: | An open access version is available from UCL Discovery |
| Publisher version: | https://www.nhivna.org/HIVNursingJournal |
| Language: | English |
| Additional information: | This version is the author accepted manuscript. For information on re-use, please refer to the publisher’s terms and conditions. |
| UCL classification: | UCL UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > Inst of Clinical Trials and Methodology UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > Inst of Clinical Trials and Methodology > MRC Clinical Trials Unit at UCL |
| URI: | https://discovery.ucl.ac.uk/id/eprint/10093575 |
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