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Living with young onset dementia and actively shaping dementia research - The Angela Project

Oliver, K; O'Malley, M; Parkes, J; Stamou, V; La Fontaine, J; Oyebode, J; Carter, J; (2020) Living with young onset dementia and actively shaping dementia research - The Angela Project. Dementia , 19 (1) pp. 41-48. 10.1177/1471301219876414. Green open access

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Abstract

Younger people living with dementia have been actively engaged in challenging society’s attitude to dementia. Despite their increased visibility though, there are substantial obstacles for younger people living with dementia in receiving a timely and accurate diagnosis and gaining access to appropriate support. Keith Oliver has been an active member of the Patient and Public Involvement Forum for the Angela Project, an Alzheimer’s Society funded project aimed at improving accuracy of diagnosis and post-diagnostic support for younger people living with dementia. In this article, Keith shares his experience of receiving a diagnosis of dementia and how he has since been involved in research projects, highlighting the benefits of Patient and Public Involvement for both the person living with dementia, as well as for the research group. Keith concludes by encouraging better Patient and Public Involvement practice in all projects, emphasising the benefits to all those involved in research.

Type: Article
Title: Living with young onset dementia and actively shaping dementia research - The Angela Project
Location: England
Open access status: An open access version is available from UCL Discovery
DOI: 10.1177/1471301219876414
Publisher version: https://doi.org/10.1177%2F1471301219876414
Language: English
Additional information: This version is the author accepted manuscript. For information on re-use, please refer to the publisher’s terms and conditions.
UCL classification: UCL
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences > Division of Psychiatry
URI: https://discovery.ucl.ac.uk/id/eprint/10090742
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